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Citation

Zawati, MH and Chalmers, DRC and Dallari, SG and de Neiva Borba, M and Pinkesz, M and Joly, Y and Chen, H and Hartlev, M and Leitsalu, L and Soini, S and Rial-Sebbag, E and Hoppe, N and Garani-Papadatos, T and Vidalis, P and Srinivas, KR and Siegal, G and Negri, S and Hatanaka, R and Al-Hussaini, M and Al-Tabba, A and Motta-Murgia, L and Moran, LET and Hendriks, A and Nnamuchi, O and Isasi, R and Krekora-Zajac, D and Sadoun, E and Ho, C and Andanda, P and Lee, WB and Nicolas, P and Mattsson, T and Talanova, V and Dosch, A and Sprumont, D and Fan, CT and Hung, TH and Kaye, J and Phillips, A and Gowans, H and Shah, N and Hazel, JW, Country Reports, Journal of Law, Medicine and Ethics, 47, (4) pp. 582-704. ISSN 1073-1105 (2019) [Refereed Article]

Copyright Statement

Copyright 2019 The Authors

DOI: doi:10.1177/1073110519897736

Abstract

Researchers in genomics are exploring novel ways to interact directly with prospective participants without utilizing physicians, hospitals, or biobanks as intermediaries. Many researchers are interested in using the internet to directly recruit and enroll research participants in genomic studies by posting information online about active or proposed studies. This direct-to-participant (DTP) approach could take place under three main scenarios.

Item Details

Item Type:Refereed Article
Keywords:genomics, direct-to-participant approach, DTP
Research Division:Law and Legal Studies
Research Group:Private law and civil obligations
Research Field:Intellectual property law
Objective Division:Expanding Knowledge
Objective Group:Expanding knowledge
Objective Field:Expanding knowledge in law and legal studies
UTAS Author:Chalmers, DRC (Professor Don Chalmers)
ID Code:137978
Year Published:2019
Web of Science® Times Cited:2
Deposited By:Law
Deposited On:2020-03-18
Last Modified:2020-05-25
Downloads:0

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