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journal contribution
posted on 2023-05-20, 11:53 authored by Zawati, MH, Donald ChalmersDonald Chalmers, Dallari, SG, de Neiva Borba, M, Pinkesz, M, Joly, Y, Chen, H, Hartlev, M, Leitsalu, L, Soini, S, Rial-Sebbag, E, Hoppe, N, Garani-Papadatos, T, Vidalis, P, Srinivas, KR, Siegal, G, Negri, S, Hatanaka, R, Al-Hussaini, M, Al-Tabba, A, Motta-Murgia, L, Moran, LET, Hendriks, A, Nnamuchi, O, Isasi, R, Krekora-Zajac, D, Sadoun, E, Ho, C, Andanda, P, Lee, WB, Nicolas, P, Mattsson, T, Talanova, V, Dosch, A, Sprumont, D, Fan, CT, Hung, TH, Kaye, J, Phillips, A, Gowans, H, Shah, N, Hazel, JW
Researchers in genomics are exploring novel ways to interact directly with prospective participants without utilizing physicians, hospitals, or biobanks as intermediaries. Many researchers are interested in using the internet to directly recruit and enroll research participants in genomic studies by posting information online about active or proposed studies. This direct-to-participant (DTP) approach could take place under three main scenarios.

History

Publication title

Journal of Law, Medicine and Ethics

Volume

47

Issue

4

Pagination

582-704

ISSN

1073-1105

Department/School

Faculty of Law

Publisher

Amer Soc Law Medicine Ethics

Place of publication

765 Commonwealth Ave, Suite 1634, Boston, USA, Ma, 02215

Rights statement

Copyright 2019 The Authors

Repository Status

  • Restricted

Socio-economic Objectives

Expanding knowledge in law and legal studies

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    University Of Tasmania

    Categories

    Keywords

    genomicsdirect-to-participant approachDTP

    Licence

    In Copyright

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