University of Tasmania
Browse

File(s) under permanent embargo

Differences between proxy and patient assessments of cancer care experiences and quality ratings

journal contribution
posted on 2023-05-20, 10:47 authored by Jessica RoydhouseJessica Roydhouse, Gutman, R, Keating, NL, Mor, V, Wilson, IB
Objective. To assess the impact of proxy survey responses on cancer care experience reports and quality ratings.

Data Sources/Study Setting. Secondary analysis of data from Cancer Care Outcomes Research and Surveillance (CanCORS). Recruitment occurred from 2003 to 2005.

Study Design. The study was a cross-sectional observational study. The respondents were patients with incident colorectal or lung cancer or their proxies.

Data Collection/Extraction Methods. Analyses used linear regression models with an independent variable for proxy versus patient responses as well as study site and clinical covariates. The outcomes were experiences with medical care, nursing care, care coordination, and care quality rating. Multiple imputation was used for missing data.

Principal Findings. Among 6,471 respondents, 1,011 (16 percent) were proxies. The proportion of proxy respondents varied from 6 percent to 28 percent across study sites. Adjusted proxy scores were modestly higher for medical care experiences (+1.28 points [95 percent CI:+ 0.05 to +2.51]), but lower for nursing care (-2.81 [95 percent CI: -4.11 to -1.50]) and care coordination experiences (-2.98 [95 percent CI: -4.15 to -1.81]). There were no significant differences between adjusted patient and proxy ratings of quality.

Conclusions. Proxy responses have small but statistically significant differences from patient responses. However, if ratings of care are used for financial incentives, such differences could be exaggerated across practices or areas if proxy use varies.

History

Publication title

Health Services Research

Volume

53

Pagination

919-943

ISSN

1475-6773

Department/School

Menzies Institute for Medical Research

Publisher

Wiley-Blackwell Publishing, Inc.

Place of publication

United States

Rights statement

Copyright 2018 Health Research and Educational Trust

Repository Status

  • Restricted

Socio-economic Objectives

Evaluation of health outcomes

Usage metrics

    University Of Tasmania

    Exports

    RefWorks
    BibTeX
    Ref. manager
    Endnote
    DataCite
    NLM
    DC