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A personal narrative on living and dealing with psychiatric symptoms after DBS surgery

Citation

Gilbert, F and Viana, JNM, A personal narrative on living and dealing with psychiatric symptoms after DBS surgery, Narrative Inquiry in Bioethics, 8, (1) pp. 67-77. ISSN 2157-1740 (2018) [Refereed Article]

Copyright Statement

© 2018 by Johns Hopkins University Press

DOI: doi:10.1353/nib.2018.0024

Abstract

Although deep brain stimulation (DBS) may result in dramatic motor improvement in people with Parkinsonís disease (PD), it has been correlated with a number of postoperative psychiatric side effects. We report a case of a person with PD experiencing depression and hypomania following DBS surgery. We provide a detailed report of the patientís personal experiences dealing with and managing these psychiatric side effects for three years. Providing a personal narrative focusing on detailed patient subjective experiences complements reports that give insight into the short- and long-term effects of DBS on established psychiatric measures and neurologic activity. But, most importantly, such a qualitative approach provides prospective patients and clinicians with a broader ethical picture of real-life challenges faced and coping strategies employed by PD patients treated with DBS who are experiencing psychiatric adverse events. This case study reinforces the ethical need to disclose the potential risk of harm to prospective patients as well as the importance of establishing a multidisciplinary postoperative supportive group.

Item Details

Item Type:Refereed Article
Keywords:deep brain stimulation, identity, psychological effects, adverse effects
Research Division:Philosophy and Religious Studies
Research Group:Applied ethics
Research Field:Ethical use of new technology
Objective Division:Culture and Society
Objective Group:Ethics
Objective Field:Bioethics
UTAS Author:Gilbert, F (Dr Frederic Gilbert)
ID Code:134151
Year Published:2018
Funding Support:Australian Research Council (DE150101390)
Deposited By:College Office - CALE
Deposited On:2019-07-31
Last Modified:2019-08-02
Downloads:0

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