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Value versus use for patients: findings from an ICT supported cystic fibrosis self-management project

Citation

Roehrer, E and Cummings, E and Ellis, L and Turner, P, Value versus use for patients: findings from an ICT supported cystic fibrosis self-management project, Studies in Health Technology and Informatics, 208 pp. 319-323. ISSN 0926-9630 (2015) [Refereed Article]

Copyright Statement

Copyright 2015 IOS Press

DOI: doi:10.3233/978-1-61499-488-6-319

Abstract

This paper presents findings from the implementation of an online symptom monitoring diary that was part of a broader project aimed to support self-management of cystic fibrosis and the development of an online community of practice (CoP). The findings challenge conventional perspectives on how value is acquired by patients and their families from electronic tools designed to provide them with support. Additionally, the findings highlight complex relationships between user needs and subsequent tool use that challenge approaches to the measurement of value from ehealth projects.

Item Details

Item Type:Refereed Article
Keywords:user evaluation of ICT, cystic fibrosis self-management, ICT symptom monitoring, ICT evaluation challenges
Research Division:Information and Computing Sciences
Research Group:Library and Information Studies
Research Field:Health Informatics
Objective Division:Health
Objective Group:Clinical Health (Organs, Diseases and Abnormal Conditions)
Objective Field:Respiratory System and Diseases (incl. Asthma)
Author:Roehrer, E (Dr Erin Roehrer)
Author:Cummings, E (Associate Professor Liz Cummings)
Author:Ellis, L (Dr Leonie Ellis)
Author:Turner, P (Associate Professor Paul Turner)
ID Code:99284
Year Published:2015
Deposited By:Health Sciences
Deposited On:2015-03-18
Last Modified:2016-05-31
Downloads:0

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