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Perspectives of paediatric and adult gastroenterologists on transfer and transition care of adolescents with inflammatory bowel disease

Citation

Wright, EK and Williams, J and Andrews, JM and Day, AS and Gearry, RB and Bampton, P and Moore, D and Lemberg, D and Ravikumaran, R and Wilson, J and Lewindon, P and Radford-Smith, G and Rosenbaum, J and Catto-Smith, A and Desmond, PV and Connell, WR and Cameron, D and Alex, G and Bell, SJ and De Cruz, P, Perspectives of paediatric and adult gastroenterologists on transfer and transition care of adolescents with inflammatory bowel disease, Internal Medicine Journal, 44, (5) pp. 490-496. ISSN 1444-0903 (2014) [Refereed Article]

Copyright Statement

Copyright 2014 Royal Australasian College of Physicians

DOI: doi:10.1111/imj.12402

Abstract

BACKGROUND: Programmes specific to inflammatory bowel disease (IBD) that facilitate transition from paediatric to adult care are currently lacking.

AIM: We aimed to explore the perceived needs of adolescents with IBD among paediatric and adult gastroenterologists and to identify barriers to effective transition.

METHODS: A web-based survey of paediatric and adult gastroenterologists in Australia and New Zealand employed both ranked items (Likert scale; from 1 not important to 5 very important) and forced choice items regarding the importance of various factors in facilitating effective transition of adolescents from paediatric to adult care.

RESULTS: Response rate among 178 clinicians was 41%. Only 23% of respondents felt that adolescents with IBD were adequately prepared for transition to adult care. Psychological maturity (Mean = 4.3, standard deviation (SD) = 0.70) and readiness as assessed by adult caregiver (Mean = 4, SD = 0.72) were prioritised as the most important factors in determining timing of transfer. Self-efficacy and readiness as assessed by adult caregiver were considered the two most important factors to determine timing of transition by both groups of gastroenterologists. Poor medical and surgical handover (Mean = 4.10, SD = 0.8) and patients' lack of responsibility for their own care (Mean= 4.10, SD = 0.82) were perceived as major barriers to successful transition by both paediatric and adult gastroenterologists.

CONCLUSIONS: Deficiencies exist in current transition care of adolescents with IBD in Australia and New Zealand. Standardising transition care practices with strategies aimed at optimising communication, patient education, self-efficacy and adherence may improve outcomes.

Item Details

Item Type:Refereed Article
Keywords:transfer, transition, adolescent, inflammatory bowel disease
Research Division:Medical and Health Sciences
Research Group:Paediatrics and Reproductive Medicine
Research Field:Paediatrics
Objective Division:Health
Objective Group:Clinical Health (Organs, Diseases and Abnormal Conditions)
Objective Field:Digestive System Disorders
Author:Wilson, J (Dr Jarrad Wilson)
ID Code:98000
Year Published:2014
Web of Science® Times Cited:12
Deposited By:Menzies Institute for Medical Research
Deposited On:2015-01-27
Last Modified:2015-03-10
Downloads:0

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