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Family involvement in decision making for people with dementia in residential aged care: a systematic review of quantitative literature


Petriwskyj, A and Gibson, A and Parker, D and Banks, S and Andrews, S and Robinson, A, Family involvement in decision making for people with dementia in residential aged care: a systematic review of quantitative literature, International Journal of Evidence-Based Healthcare, 12, (2) pp. 64-86. ISSN 1744-1595 (2014) [Refereed Article]

Copyright Statement

Copyright 2014 University of Adelaide, Joanna Briggs Institute

DOI: doi:10.1097/XEB.0000000000000003


Aim Ensuring older adults' involvement in their care is accepted as good practice and is vital, particularly for people with dementia, whose care and treatment needs change considerably over the course of the illness. However, involving family members in decision making on people's behalf is still practically difficult for staff and family. The aim of this review was to identify and appraise the existing quantitative evidence about family involvement in decision making for people with dementia living in residential aged care.

Methods: The present Joanna Briggs Institute (JBI) metasynthesis assessed studies that investigated involvement of family members in decision making for people with dementia in residential aged care settings. While quantitative and qualitative studies were included in the review, this paper presents the quantitative findings. A comprehensive search of 15 electronic databases was performed. The search was limited to papers published in English, from 1990 to 2013. Twenty-six studies were identified as being relevant; 10 were quantitative, with 1 mixed method study. Two independent reviewers assessed the studies for methodological validity and extracted the data using the JBI Meta Analysis of Statistics Assessment and Review Instrument (JBI-MAStARI). The findings were synthesized and presented in narrative form.

Results: The findings related to decisions encountered and made by family surrogates, variables associated with decisions, surrogates' perceptions of, and preferences for, their roles, as well as outcomes for people with dementia and their families.

Conclusions: The results identified patterns within, and variables associated with, surrogate decision making, all of which highlight the complexity and variation regarding family involvement. Attention needs to be paid to supporting family members in decision making in collaboration with staff.

Item Details

Item Type:Refereed Article
Keywords:decision making, dementia, family, quantitative, residential aged care, systematic review
Research Division:Health Sciences
Research Group:Nursing
Research Field:Aged care nursing
Objective Division:Health
Objective Group:Provision of health and support services
Objective Field:Nursing
UTAS Author:Banks, S (Dr Susan Banks)
UTAS Author:Andrews, S (Dr Sharon Andrews)
UTAS Author:Robinson, A (Professor Andrew Robinson)
ID Code:97879
Year Published:2014
Deposited By:Wicking Dementia Research and Education Centre
Deposited On:2015-01-20
Last Modified:2017-11-02

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