Petriwskyj, A and Gibson, A and Parker, D and Banks, S and Andrews, S and Robinson, A, A qualitative metasynthesis: family involvement in decision making for people with dementia in residential aged care, International Journal of Evidence-Based Healthcare, 12, (2) pp. 87-104. ISSN 1744-1595 (2014) [Refereed Article]
Copyright 2014 University of Adelaide, Joanna Briggs Institute
Aim: Involving people in decisions about their care is good practice and ensures optimal outcomes. Despite considerable research, in practice family involvement in decision making can be challenging for both care staff and families. The aim of this review was to identify and appraise existing knowledge about family involvement in decision making for people with dementia living in residential aged care.
Methods: The present Joanna Briggs Institute meta-synthesis considered studies that investigate involvement of family members in decision making for people with dementia in residential aged care settings. While quantitative and qualitative studies were included in the review, this article presents the qualitative findings. A comprehensive search of studies was conducted in 15 electronic databases. The search was limited to papers published in English, from 1990 to 2013. Twenty-six studies were identified as relevant for this review; 16 were qualitative papers reporting on 15 studies. Two independent reviewers assessed the studies for methodological validity and extracted the data using the standardized Joanna Briggs Institute Qualitative Assessment and Review Instrument (JBI-QARI). The findings were synthesized using JBI-QARI.
Results: The findings related to the decisions encountered and made by family surrogates, family perceptions of, and preferences for, their role/s, factors regarding treatment decisions and the collaborative decision-making process, and outcomes for family decision makers.
Conclusion: Results indicate varied and complex experiences and multiple factors influencing decision making. Communication and contacts between staff and families and the support available for families should be addressed, as well as the role of different stakeholders in decisions.
|Item Type:||Refereed Article|
|Keywords:||decision making, dementia, family, nursing, qualitative, residential aged care, systematic review|
|Research Division:||Health Sciences|
|Research Field:||Aged care nursing|
|Objective Group:||Provision of health and support services|
|UTAS Author:||Banks, S (Dr Susan Banks)|
|UTAS Author:||Andrews, S (Dr Sharon Andrews)|
|UTAS Author:||Robinson, A (Professor Andrew Robinson)|
|Deposited By:||Wicking Dementia Research and Education Centre|
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