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Australian Idiopathic Pulmonary Fibrosis Registry: Vital lessons from a national prospective collaborative project
Citation
Moodley, Y and Goh, N and Glaspole, I and Macansh, S and Walters, EH and Chapman, S and Hopkins, P and Reynolds, PN and Zappala, C and Cooper, W and Mahar, A and Ellis, S and McCormack, S and Darbishire, W and Wood-Baker, R and Corte, TJ, Australian IPF Registry Steering Commitee, Australian Idiopathic Pulmonary Fibrosis Registry: Vital lessons from a national prospective collaborative project, Respirology, 19 pp. 1088-1091. ISSN 1323-7799 (2014) [Letter or Note in Journal]
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Abstract
There is little Australian epidemiologic data on idiopathic pulmonary fibrosis (IPF), a relatively uncommon but devastating disease. The vast geographic distances in Australia have been a major impediment for collaborative research into IPF. A collaborative national effort, the Australian IPF Registry, has been formed, launched and is recruiting successfully (n = 359, January 2014). Our experience provides unique insights for others wishing to set up IPF registries and in time for a global IPF registry
Item Details
| Item Type: | Letter or Note in Journal |
|---|---|
| Keywords: | Idiopathic Pulmonary Fibrosis |
| Research Division: | Medical and Health Sciences |
| Research Group: | Cardiorespiratory Medicine and Haematology |
| Research Field: | Respiratory Diseases |
| Objective Division: | Health |
| Objective Group: | Clinical Health (Organs, Diseases and Abnormal Conditions) |
| Objective Field: | Respiratory System and Diseases (incl. Asthma) |
| Author: | Walters, EH (Professor Haydn Walters) |
| Author: | Wood-Baker, R (Professor Richard Wood-Baker) |
| ID Code: | 97366 |
| Year Published: | 2014 |
| Funding Support: | National Health and Medical Research Council (1066128) |
| Web of Science® Times Cited: | 16 |
| Deposited By: | Medicine (Discipline) |
| Deposited On: | 2014-12-12 |
| Last Modified: | 2014-12-12 |
| Downloads: | 0 |
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