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Australian Idiopathic Pulmonary Fibrosis Registry: Vital lessons from a national prospective collaborative project

Citation

Moodley, Y and Goh, N and Glaspole, I and Macansh, S and Walters, EH and Chapman, S and Hopkins, P and Reynolds, PN and Zappala, C and Cooper, W and Mahar, A and Ellis, S and McCormack, S and Darbishire, W and Wood-Baker, R and Corte, TJ, Australian IPF Registry Steering Commitee, Australian Idiopathic Pulmonary Fibrosis Registry: Vital lessons from a national prospective collaborative project, Respirology, 19 pp. 1088-1091. ISSN 1323-7799 (2014) [Letter or Note in Journal]


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DOI: doi:10.1111/resp.12358

Abstract

There is little Australian epidemiologic data on idiopathic pulmonary fibrosis (IPF), a relatively uncommon but devastating disease. The vast geographic distances in Australia have been a major impediment for collaborative research into IPF. A collaborative national effort, the Australian IPF Registry, has been formed, launched and is recruiting successfully (n = 359, January 2014). Our experience provides unique insights for others wishing to set up IPF registries and in time for a global IPF registry

Item Details

Item Type:Letter or Note in Journal
Keywords:Idiopathic Pulmonary Fibrosis
Research Division:Medical and Health Sciences
Research Group:Cardiorespiratory Medicine and Haematology
Research Field:Respiratory Diseases
Objective Division:Health
Objective Group:Clinical Health (Organs, Diseases and Abnormal Conditions)
Objective Field:Respiratory System and Diseases (incl. Asthma)
Author:Walters, EH (Professor Haydn Walters)
Author:Wood-Baker, R (Professor Richard Wood-Baker)
ID Code:97366
Year Published:2014
Funding Support:National Health and Medical Research Council (1066128)
Deposited By:Medicine (Discipline)
Deposited On:2014-12-12
Last Modified:2014-12-12
Downloads:0

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