eCite Digital Repository

New avenues within community engagement: addressing the ingenuity gap in our approach to health research and future provision of health care

Citation

Chalmers, D and McWhirter, RE and Nicol, D and Whitton, T and Otlowski, M and Burgess, MM and Foote, SJ and Critchley, C and Dickinson, JL, New avenues within community engagement: addressing the ingenuity gap in our approach to health research and future provision of health care, Journal of Responsible Innovation, 1, (3) pp. 321-328. ISSN 2329-9460 (2014) [Refereed Article]

Copyright Statement

Copyright 2014 Taylor & Francis

DOI: doi:10.1080/23299460.2014.963002

Abstract

The proliferation of large biorepositories and the staggering advances in our ability to analyse large numbers of human genomes relatively quickly and cost-effectively have been important drivers in the move towards personalised medicine. However, our advances in the development of these tools have outstripped our performance in addressing the issues of ethics and consent surrounding health policy and governance of such repositories, the implications of proliferation of genomic information for the individual and its potential for misuse. Public consultation is urgently needed in the development of ethical guidelines for these emergent issues; however, effective strategies for facilitating community engagement and informed debate have been lacking. Public consultation through deliberative democracy is bringing an essential new dimension to public engagement in the genomic medicine era.

Item Details

Item Type:Refereed Article
Keywords:biobanking, genomic research, community engagement, deliberative democracy, personalised medicine
Research Division:Biological Sciences
Research Group:Genetics
Research Field:Genetics not elsewhere classified
Objective Division:Health
Objective Group:Other Health
Objective Field:Health not elsewhere classified
Author:Chalmers, D (Professor Don Chalmers)
Author:McWhirter, RE (Dr Rebekah McWhirter)
Author:Nicol, D (Professor Dianne Nicol)
Author:Whitton, T (Ms Tess Whitton)
Author:Otlowski, M (Professor Margaret Otlowski)
Author:Critchley, C (Associate Professor Christine Critchley)
Author:Dickinson, JL (Associate Professor Joanne Dickinson)
ID Code:95772
Year Published:2014
Deposited By:Menzies Institute for Medical Research
Deposited On:2014-10-08
Last Modified:2015-05-22
Downloads:0

Repository Staff Only: item control page