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To share or not to share is the question

Citation

Chalmers, DRC and Nicol, D and Otlowski, MFA, To share or not to share is the question, Applied and Translational Genomics, 3, (4) pp. 116-119. ISSN 2212-0661 (2014) [Refereed Article]


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Copyright 2014 Elsevier Licenced under Creative Commons Attribution-NonCommercial-NoDerivs 3.0 Unported (CC BY-NC-ND 3.0) http://creativecommons.org/licenses/by-nc-nd/3.0/

DOI: doi:10.1016/j.atg.2014.09.011

Abstract

Data sharing is increasingly becoming an essential component of clinical practice and biomedical research. The debate has shifted from whether or not to exchange data to how best to achieve optimal sharing. This raises new ethical and legal challenges, particularly with regard to consent and privacy. This article discusses recent developments in the formulation of best practice guidelines for data sharing. Particular attention is focused on the Global Alliance for Genomics and Health (GA4GH) draft Framework of Conduct for Data Sharing.

Item Details

Item Type:Refereed Article
Keywords:Data sharing; Personalised medicine; Privacy
Research Division:Law and Legal Studies
Research Group:Law
Research Field:Law not elsewhere classified
Objective Division:Law, Politics and Community Services
Objective Group:Justice and the Law
Objective Field:Justice and the Law not elsewhere classified
Author:Chalmers, DRC (Professor Don Chalmers)
Author:Nicol, D (Professor Dianne Nicol)
Author:Otlowski, MFA (Professor Margaret Otlowski)
ID Code:95604
Year Published:2014
Deposited By:Faculty of Law
Deposited On:2014-10-06
Last Modified:2015-05-05
Downloads:169 View Download Statistics

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