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To share or not to share is the question
Citation
Chalmers, DRC and Nicol, D and Otlowski, MFA, To share or not to share is the question, Applied and Translational Genomics, 3, (4) pp. 116-119. ISSN 2212-0661 (2014) [Refereed Article]
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Copyright Statement
Copyright 2014 Elsevier Licenced under Creative Commons Attribution-NonCommercial-NoDerivs 3.0 Unported (CC BY-NC-ND 3.0) http://creativecommons.org/licenses/by-nc-nd/3.0/
DOI: doi:10.1016/j.atg.2014.09.011
Abstract
Data sharing is increasingly becoming an essential component of clinical practice and biomedical research. The debate has shifted from whether or not to exchange data to how best to achieve optimal sharing. This raises new ethical and legal challenges, particularly with regard to consent and privacy. This article discusses recent developments in the formulation of best practice guidelines for data sharing. Particular attention is focused on the Global Alliance for Genomics and Health (GA4GH) draft Framework of Conduct for Data Sharing.
Item Details
| Item Type: | Refereed Article |
|---|---|
| Keywords: | Data sharing; Personalised medicine; Privacy |
| Research Division: | Law and Legal Studies |
| Research Group: | Public law |
| Research Field: | Public law not elsewhere classified |
| Objective Division: | Law, Politics and Community Services |
| Objective Group: | Justice and the law |
| Objective Field: | Justice and the law not elsewhere classified |
| UTAS Author: | Chalmers, DRC (Professor Don Chalmers) |
| UTAS Author: | Nicol, D (Professor Dianne Nicol) |
| UTAS Author: | Otlowski, MFA (Professor Margaret Otlowski) |
| ID Code: | 95604 |
| Year Published: | 2014 |
| Deposited By: | Faculty of Law |
| Deposited On: | 2014-10-06 |
| Last Modified: | 2015-05-05 |
| Downloads: | 280 View Download Statistics |
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