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Developing and testing a strategy to enhance a palliative approach and care continuity for people who have dementia: Study overview and protocol

Citation

Toye, c and Robinson, AL and Jiwa, M and Andrews, SM and McInerney, F and Horner, B and Holloway, K and Stratton, BM, Developing and testing a strategy to enhance a palliative approach and care continuity for people who have dementia: Study overview and protocol, Bmc Palliative Care, 11 Article 4. ISSN 1472-684X (2012) [Refereed Article]


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DOI: doi:10.1186/1472-684X-11-4

Abstract

BACKGROUND: Typically, dementia involves progressive cognitive and functional deterioration, leading to death. A palliative approach recognizes the inevitable health decline, focusing on quality of life. The approach is holistic, proactive, supports the client and the family, and can be provided by the client's usual care team.In the last months of life, distressing symptoms, support needs, and care transitions may escalate. This project trialed a strategy intended to support a consistent, high quality, palliative approach for people with dementia drawing close to death. The strategy was to implement two communities of practice, drawn primarily from service provider organizations across care sectors, supporting them to address practice change. Communities comprised practitioners and other health professionals with a passionate commitment to dementia palliative care and the capacity to drive practice enhancement within partnering organizations.Project aims were to document: (i) changes driven by the communities of practice; (ii) changes in staff/practitioner characteristics during the study (knowledge of a palliative approach and dementia; confidence delivering palliative care; views on death and dying, palliative care, and a palliative approach for dementia); (iii) outcomes from perspectives of family carers, care providers, and community of practice members; (iv) the extent to which changes enhanced practice and care continuity; and (v) barriers to and facilitators of successful community of practice implementation.

METHODS/DESIGN: This action research project was implemented over 14 months in 2010/11 in metropolitan Perth, Western Australia and regional Launceston, Tasmania. Each state based community of practice worked with the researchers to scope existing practice and its outcomes. The research team compiled a report of existing practice recommendations and resources. Findings of these two steps informed community of practice action plans and development of additional resources. Change implementation was recorded and explored in interviews, comparisons being made with practice recommendations. Changes in staff/practitioner characteristics were evaluated using survey data. Findings from semi structured interviews and survey administration established outcomes from perspectives of family carers, care providers, and community of practice members. Consideration of processes and outcomes, across the two state based settings, informed identification of barriers and facilitators. Community of practice reflections also informed study recommendations.

Item Details

Item Type:Refereed Article
Keywords:Action research; Dementia; Evidence translation; Palliative care
Research Division:Medical and Health Sciences
Research Group:Public Health and Health Services
Research Field:Health and Community Services
Objective Division:Health
Objective Group:Health and Support Services
Objective Field:Palliative Care
Author:Robinson, AL (Professor Andrew Robinson)
Author:Andrews, SM (Dr Sharon Andrews)
Author:McInerney, F (Professor Fran McInerney)
Author:Stratton, BM (Dr Brigit Stratton)
ID Code:95471
Year Published:2012
Web of Science® Times Cited:3
Deposited By:Wicking Dementia Research and Education Centre
Deposited On:2014-10-02
Last Modified:2017-11-23
Downloads:0

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