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Public reaction to direct-to-consumer online genetic tests: Comparing attitudes, trust and intentions across commercial and conventional providers
journal contribution
posted on 2023-05-18, 01:09 authored by Christine Critchley, Dianne NicolDianne Nicol, Margaret OtlowskiMargaret Otlowski, Donald ChalmersDonald ChalmersThe success of personalised medicine depends upon the public’s embracing genetic tests. Tests that claim to predict an individual’s future health can now be accessed via online companies outside of conventional health regulations. This research assessed the extent to which the public embrace direct-to-consumer (DTC) genetic tests relative to those obtained by a conventional medical practitioner (MP). It also examined the reasons for differences across providers using a randomised experimental telephone survey of 1000 Australians. Results suggest that people were significantly less likely to approve of, and order a DTC genetic test administered by a company compared to a MP because they were less trusting of companies’ being able to protect their privacy and provide them with access to genetic expertise and counselling. Markets for DTC genetic tests provided by companies would therefore significantly increase if trust in privacy protection and access to expertise are enhanced through regulation.
History
Publication title
Public Understanding of ScienceVolume
24Issue
6Pagination
731-750ISSN
0963-6625Department/School
Faculty of LawPublisher
Sage Publications LtdPlace of publication
6 Bonhill Street, London, England, Ec2A 4PuRights statement
Copyright 2014 Sage PublicationsRepository Status
- Restricted