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Personal health information, privacy and surveillance: Do we need a critical voice?

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posted on 2023-05-22, 14:33 authored by Whetton, SG
This paper argues that many expanding secondary uses of personal health information are moving beyond legitimate monitoring processes, to become surveillance practices used for purposes of controlling individuals and populations. The paper focuses on the academic discipline of health informatics as a key claim-making site for influencing understandings about uses of personal health information. Using a Foucauldian influenced analysis, it discusses the way discourses shape our attitude to expanding uses of personal health information. It argues that aspirational goals of the discipline discourage critical analyses, creating the potential for the health informatics community to support expanding use of personal information for activities that may result in discrimination, disadvantage.

History

Publication title

MEDINFO 2013: Proceedings of the World Congress on Medical and Health Informatics

Volume

Parts 1 and 2

Editors

Christoph Ulrich Lehmann, Elske Ammenwerth, Christian Nøhr

Pagination

234-238

ISBN

978-1-61499-288-2

Department/School

School of Health Sciences

Publisher

IOS Press

Place of publication

Netherlands

Extent

186

Rights statement

Copyright IOS Press

Repository Status

  • Restricted

Socio-economic Objectives

Communication technologies, systems and services not elsewhere classified

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