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Personal health information, privacy and surveillance: Do we need a critical voice?


Whetton, SG, Personal health information, privacy and surveillance: Do we need a critical voice?, MEDINFO 2013: Proceedings of the World Congress on Medical and Health Informatics, IOS Press, Christoph Ulrich Lehmann, Elske Ammenwerth, Christian Nohr (ed), Netherlands, pp. 234-238. ISBN 978-1-61499-288-2 (2013) [Research Book Chapter]

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This paper argues that many expanding secondary uses of personal health information are moving beyond legitimate monitoring processes, to become surveillance practices used for purposes of controlling individuals and populations. The paper focuses on the academic discipline of health informatics as a key claim-making site for influencing understandings about uses of personal health information. Using a Foucauldian influenced analysis, it discusses the way discourses shape our attitude to expanding uses of personal health information. It argues that aspirational goals of the discipline discourage critical analyses, creating the potential for the health informatics community to support expanding use of personal information for activities that may result in discrimination, disadvantage.

Item Details

Item Type:Research Book Chapter
Keywords:Privacy, surveillance, discourse, academic discipline, health informatics
Research Division:Health Sciences
Research Group:Health services and systems
Research Field:Health informatics and information systems
Objective Division:Information and Communication Services
Objective Group:Communication technologies, systems and services
Objective Field:Communication technologies, systems and services not elsewhere classified
UTAS Author:Whetton, SG (Dr Sue Whetton)
ID Code:88153
Year Published:2013
Deposited By:UTAS Centre for Rural Health
Deposited On:2014-01-14
Last Modified:2017-10-20

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