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Legal aspects of genetic databases for international biomedical research: the example of the International Cancer Genome Consortium (ICGC)

Citation

Romeo-Casabona, C and Nicolas, P and Knoppers, BM and Joly, Y and Wallace, S and Chalmers, D and Dyke, S and Kennedy, K and Troncoso, A and Kaan, T and Rial-Sebbag, E, Legal aspects of genetic databases for international biomedical research: the example of the International Cancer Genome Consortium (ICGC), Revista de Derecho y Genoma Humano / Law and the Human Genome Review, 37, (July-December 2012) pp. 15-34. ISSN 1134-7198 (2012) [Refereed Article]


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Copyright 2012 Catedra Interuniversitaria

Official URL: http://www.catedraderechoygenomahumano.es/revista....

Abstract

There is a noticeable lack of international regulation on personal data exchange and management in research. This artcle sheds lights in this area by describing how the International Cancer Genome Consortium is developing policies and procedures to address the ethical and legal issues raised by the international transfer of data and results. These policies and procedures aim, first and most importantly, to safeguard the interests of the research participants and other involved stakeholders and, secondly, to facilitate the sharing of data and results to realize greater benefits from this kind of internationally collaborative genetic research.

Item Details

Item Type:Refereed Article
Keywords:genetic databases, biomedical research, ICGC
Research Division:Law and Legal Studies
Research Group:Law
Research Field:Law not elsewhere classified
Objective Division:Law, Politics and Community Services
Objective Group:Justice and the Law
Objective Field:Justice and the Law not elsewhere classified
Author:Chalmers, D (Professor Don Chalmers)
ID Code:84025
Year Published:2012
Deposited By:Law
Deposited On:2013-04-12
Last Modified:2016-09-30
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