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ELSI 2.0 for genomics and society

Citation

Kaye, J and Meslin, EM and Knoppers, BM and Juengst, ET and Deschenes, M and Cambon-Thomsen, A and Chalmers, D and De Vries, J and Edwards, K and Hoppe, N and Kent, A and Adebamowo, C and Marshall, P and Kato, K, ELSI 2.0 for genomics and society, Science, 336, (6082) pp. 673-674. ISSN 0036-8075 (2012) [Refereed Article]

Copyright Statement

Copyright 2012 The Authors

DOI: doi:10.1126/science.1218015

Abstract

Anticipating and addressing the ethical, legal, and social implications (ELSI) of scientific developments has been a key feature of the genomic research agenda. Research in genomics is advancing by developing common infrastructures and research platforms, open-access and sharing policies, and new forms of international collaborations. In this paper, we outline a proposal to establish a "collaboratory" for ELSI research to enable it to become more coordinated, responsive to societal needs, and better able to apply the research knowledge it generates at the global level. Current ELSI research is generally nationally focused, with investigator-initiated approaches that are not always aligned with the developments in international genomics research. This makes it difficult to efficiently leverage findings that impact global practice and policy. Moreover, as translational genomic research design challenges become more pressing, ELSI research will need to develop greater capacity to respond rapidly to new developments. The ELSI 2.0 Initiative is designed to catalyze international collaboration in ELSI genomics and to enable those in the field to better assess the impact and dynamics of global genome research.

Item Details

Item Type:Refereed Article
Research Division:Law and Legal Studies
Research Group:Law
Research Field:Law not elsewhere classified
Objective Division:Law, Politics and Community Services
Objective Group:Justice and the Law
Objective Field:Justice and the Law not elsewhere classified
Author:Chalmers, D (Professor Don Chalmers)
ID Code:81834
Year Published:2012
Web of Science® Times Cited:20
Deposited By:Law
Deposited On:2013-01-09
Last Modified:2017-11-15
Downloads:0

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