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ELSI 2.0 for genomics and society

journal contribution
posted on 2023-05-17, 15:16 authored by Kaye, J, Meslin, EM, Knoppers, BM, Juengst, ET, Deschenes, M, Cambon-Thomsen, A, Donald ChalmersDonald Chalmers, De Vries, J, Edwards, K, Hoppe, N, Kent, A, Adebamowo, C, Marshall, P, Kato, K
Anticipating and addressing the ethical, legal, and social implications (ELSI) of scientific developments has been a key feature of the genomic research agenda. Research in genomics is advancing by developing common infrastructures and research platforms, open-access and sharing policies, and new forms of international collaborations. In this paper, we outline a proposal to establish a “collaboratory” for ELSI research to enable it to become more coordinated, responsive to societal needs, and better able to apply the research knowledge it generates at the global level. Current ELSI research is generally nationally focused, with investigator-initiated approaches that are not always aligned with the developments in international genomics research. This makes it difficult to efficiently leverage findings that impact global practice and policy. Moreover, as translational genomic research design challenges become more pressing, ELSI research will need to develop greater capacity to respond rapidly to new developments. The ELSI 2.0 Initiative is designed to catalyze international collaboration in ELSI genomics and to enable those in the field to better assess the impact and dynamics of global genome research.

History

Publication title

Science

Volume

336

Issue

6082

Pagination

673-674

ISSN

0036-8075

Department/School

Faculty of Law

Publisher

Amer Assoc Advancement Science

Place of publication

1200 New York Ave, Nw, Washington, USA, Dc, 20005

Rights statement

Copyright 2012 The Authors

Repository Status

  • Restricted

Socio-economic Objectives

Justice and the law not elsewhere classified

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