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Genetic discrimination: international perspectives


Otlowski, M and Taylor, S and Bombard, Y, Genetic discrimination: international perspectives, Annual Review of Genomics and Human Genetics, 13 pp. 433-454. ISSN 1527-8204 (2012) [Refereed Article]

Copyright Statement

Copyright 2012 Annual Reviews

DOI: doi:10.1146/annurev-genom-090711-163800


Genetic discrimination (GD) is a complex, multifaceted ethical, psychosocial, and legal phenomenon. It is defined as the differential treatment of asymptomatic individuals or their relatives on the basis of their real or assumed genetic characteristics. This article presents an overview of GD within the contemporary international context. It describes the concept of GD and its contextual features, reviews research evidence regarding people’s experiences of GD and the impact of GD within a range of domains, and provides an overview of legal and policy responses to GD that have emerged globally. We argue that GD is a significant and internationally established phenomenon that requires multilevel responses to ensure social justice and equitable outcomes for all citizens. Future research should monitor GD and its impacts within the community as well as institutions and should evaluate the effectiveness of legislative, policy, community education, and systemic responses.

Item Details

Item Type:Refereed Article
Keywords:stigmatization, impact, responses, strategies, law, policy
Research Division:Law and Legal Studies
Research Group:Law in context
Research Field:Law and society and socio-legal research
Objective Division:Law, Politics and Community Services
Objective Group:Justice and the law
Objective Field:Justice and the law not elsewhere classified
UTAS Author:Otlowski, M (Professor Margaret Otlowski)
UTAS Author:Taylor, S (Professor Sandy Taylor)
ID Code:81823
Year Published:2012
Web of Science® Times Cited:81
Deposited By:Law
Deposited On:2013-01-09
Last Modified:2013-05-20
Downloads:1 View Download Statistics

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