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Benefit sharing and biobanking in Australia

Citation

Nicol, D and Critchley, C, Benefit sharing and biobanking in Australia, Public Understanding of Science, 21, (5) pp. 534-555. ISSN 0963-6625 (2012) [Refereed Article]

Copyright Statement

Copyright 2011 The Author(s)

DOI: doi:10.1177/0963662511402425

Abstract

Biobanks are essential tools for facilitating biomedical research, because they provide collections of human tissue linked .with .personal information. There is still little understanding of the underlying reasons why people participate In biobanking In the increasingly commercialised and internationalised biomedical research environment. This paper reports the results of an Australia-wide telephone survey. The paper analyses the types of obligations that members of the public may wish to see incorporated in biobank benefit sharing arrangements and the extent to which their views might be influenced by underlying norms of sharing behaviour. Latent class analysis of the dataset reveals three distinct classes of respondents. We link one of these with the norm of reciprocity, one with the norm of social responsibility. The third is not clearly linked with anyone norm of sharing behaviour. The implications of these findings on biobank benefit sharing arrangements are discussed.

Item Details

Item Type:Refereed Article
Keywords:attitudes on genetics, governance of science and technology, health and new technologies, public consultations, public participation
Research Division:Law and Legal Studies
Research Group:Law
Research Field:Law and Society
Objective Division:Law, Politics and Community Services
Objective Group:Justice and the Law
Objective Field:Justice and the Law not elsewhere classified
Author:Nicol, D (Professor Dianne Nicol)
ID Code:80667
Year Published:2012
Web of Science® Times Cited:14
Deposited By:Law
Deposited On:2012-11-07
Last Modified:2013-05-09
Downloads:0

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