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The aim of this systematic review was to critically examine the research that quantifies and describes the daily patterns of time use by parents of children with complex needs. Four electronic databases were searched. A total of 32 studies (30 peer-reviewed journal articles and two theses) met the inclusion criteria. Three key findings emerged from the review: (a) Parents of children with complex needs carry a significant caregiving burden that often does not reduce as the age of the child increases, (b) supervision or 'vigilance' is a category of childcare that carries a particular time requirement for these parents and (c) parents of children with complex needs spend (sometimes considerable) time undertaking health care-related tasks outside the 'normal' parenting role. The time demands placed on parents caring for a child or children with complex needs at home should be considered when health professionals are negotiating essential and/or additional therapies or treatments to be included in a child's home care regime.

Item Type:	Refereed Article
Keywords:	time use, time management, child, disabled, complex needs, caregivers
Research Division:	Health Sciences
Research Group:	Nursing
Research Field:	Nursing not elsewhere classified
Objective Division:	Health
Objective Group:	Provision of health and support services
Objective Field:	Nursing
UTAS Author:	McCann, D (Ms Damhnat McCann)
UTAS Author:	Bull, R (Professor Rosalind Bull)
UTAS Author:	Winzenberg, T (Professor Tania Winzenberg)
ID Code:	78527
Year Published:	2012
Web of Science® Times Cited:	113
Deposited By:	Menzies Institute for Medical Research
Deposited On:	2012-07-04
Last Modified:	2017-11-02
Downloads:	1 View Download Statistics