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With growing emphasis on the importance of scientific evidence through clinical trials, qualitative studies have been used to deepen our understanding of research from participants’ perspectives. For people with a chronic illness, research participation could represent an additional impost on lives already overwhelmed with medical and care issues, and little is known about participants’ motivations when the research requires them to think differently about their illness and participate over an extended period. We interviewed participants with chronic obstructive pulmonary disease participating in a trial of a chronic disease self-management (CDSM) program. Our finding that people participate in research for altruistic reasons has similarities with other studies. We then extend our understanding of why people participate to explore how they participate. We argue that motivation based on dominant voluntaristic or altruistic values can be problematic for researchers attempting to demonstrate the benefits of CDSM strategies.

Item Type:	Refereed Article
Keywords:	altruism; illness and disease, chronic; relationships, patient-provider; research participation
Research Division:	Medical and Health Sciences
Research Group:	Cardiorespiratory Medicine and Haematology
Research Field:	Respiratory Diseases
Objective Division:	Health
Objective Group:	Clinical Health (Organs, Diseases and Abnormal Conditions)
Objective Field:	Respiratory System and Diseases (incl. Asthma)
UTAS Author:	Willis, KF (Dr Karen Willis)
UTAS Author:	Robinson, A (Professor Andrew Robinson)
UTAS Author:	Wood-Baker, R (Professor Richard Wood-Baker)
UTAS Author:	Turner, P (Associate Professor Paul Turner)
UTAS Author:	Walters, EH (Professor Haydn Walters)
ID Code:	72565
Year Published:	2011
Web of Science® Times Cited:	22
Deposited By:	Menzies Institute for Medical Research
Deposited On:	2011-08-29
Last Modified:	2012-03-26
Downloads:	0