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Participating in research: exploring participation and engagement in a study of self-management for people with chronic obstructive pulmonary disease
Citation
Willis, KF and Robinson, A and Wood-Baker, R and Turner, P and Walters, EH, Participating in research: exploring participation and engagement in a study of self-management for people with chronic obstructive pulmonary disease, Qualitative Health Research, 21, (9) pp. 1273-1282. ISSN 1049-7323 (2011) [Refereed Article]
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Copyright Statement
Copyright © 2011 SAGE Publications
DOI: doi:10.1177/1049732311405216
Abstract
With growing emphasis on the importance of scientific evidence through clinical trials, qualitative studies have been used
to deepen our understanding of research from participants’ perspectives. For people with a chronic illness, research
participation could represent an additional impost on lives already overwhelmed with medical and care issues, and
little is known about participants’ motivations when the research requires them to think differently about their illness
and participate over an extended period. We interviewed participants with chronic obstructive pulmonary disease
participating in a trial of a chronic disease self-management (CDSM) program. Our finding that people participate in
research for altruistic reasons has similarities with other studies. We then extend our understanding of why people
participate to explore how they participate. We argue that motivation based on dominant voluntaristic or altruistic
values can be problematic for researchers attempting to demonstrate the benefits of CDSM strategies.
Item Details
Item Type: | Refereed Article |
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Keywords: | altruism; illness and disease, chronic; relationships, patient-provider; research participation |
Research Division: | Biomedical and Clinical Sciences |
Research Group: | Cardiovascular medicine and haematology |
Research Field: | Respiratory diseases |
Objective Division: | Health |
Objective Group: | Clinical health |
Objective Field: | Clinical health not elsewhere classified |
UTAS Author: | Willis, KF (Dr Karen Willis) |
UTAS Author: | Robinson, A (Professor Andrew Robinson) |
UTAS Author: | Wood-Baker, R (Professor Richard Wood-Baker) |
UTAS Author: | Turner, P (Associate Professor Paul Turner) |
UTAS Author: | Walters, EH (Professor Haydn Walters) |
ID Code: | 72565 |
Year Published: | 2011 |
Web of Science® Times Cited: | 24 |
Deposited By: | Menzies Institute for Medical Research |
Deposited On: | 2011-08-29 |
Last Modified: | 2012-03-26 |
Downloads: | 0 |
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