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Participating in research: exploring participation and engagement in a study of self-management for people with chronic obstructive pulmonary disease
journal contribution
posted on 2023-05-17, 07:48 authored by Willis, KF, Andrew RobinsonAndrew Robinson, Wood-Baker, R, Paul TurnerPaul Turner, Eugene WaltersEugene WaltersWith growing emphasis on the importance of scientific evidence through clinical trials, qualitative studies have been used to deepen our understanding of research from participants’ perspectives. For people with a chronic illness, research participation could represent an additional impost on lives already overwhelmed with medical and care issues, and little is known about participants’ motivations when the research requires them to think differently about their illness and participate over an extended period. We interviewed participants with chronic obstructive pulmonary disease participating in a trial of a chronic disease self-management (CDSM) program. Our finding that people participate in research for altruistic reasons has similarities with other studies. We then extend our understanding of why people participate to explore how they participate. We argue that motivation based on dominant voluntaristic or altruistic values can be problematic for researchers attempting to demonstrate the benefits of CDSM strategies.
History
Publication title
Qualitative Health ResearchVolume
21Issue
9Pagination
1273-1282ISSN
1049-7323Department/School
School of Social SciencesPublisher
Sage Publications IncPlace of publication
2455 Teller Rd, Thousand Oaks, USA, Ca, 91320Rights statement
Copyright © 2011 SAGE PublicationsRepository Status
- Restricted