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The impact of regular hospitalisation of children living with thalassaemia on their parents in Sri Lanka: A phenomenological study

Citation

Nahalla, C and Fitzgerald, MA, The impact of regular hospitalisation of children living with thalassaemia on their parents in Sri Lanka: A phenomenological study, International Journal of Nursing Practice, 9, (3) pp. 131-139. ISSN 1322-7114 (2003) [Refereed Article]

DOI: doi:10.1046/j.1440-172X.2003.00411.x

Abstract

This paper reports on a small phenomenological study that set out to describe what it means to have a child with thalassaemia regularly attending hospital for blood transfusion. Ten parents were invited to participate from the thalassaemia unit of a large hospital in a north-west province of Sri Lanka. Data were collected by in-depth interviews with parents. The participants’ experiences are described as they reveal, in their own words, what it means to support children with this disease. With startling reality, this research portrays the problems associated with caring for these children and their regular admission to hospital. Three themes are used to present the participant’s experience: worries, medical services, and helping and being helped. The findings of the study show that there have been improvements in the service and treatment of these children in Sri Lanka. However, the lives of the parents are still dire. This research should be useful locally in terms of increasing awareness of thalassaemia and raising the consciousness of Sri Lankan nurses and other health care workers, so that they are more aware of the parents’ needs. Although phenomenological research is not generalizable, it is likely that the experience of the parents in this study has similarities throughout the developing world.

Item Details

Item Type:Refereed Article
Keywords:parental care, regular blood transfusion, regular childhood admission, thalassaemia.
Research Division:Medical and Health Sciences
Research Group:Nursing
Research Field:Nursing not elsewhere classified
Objective Division:Health
Objective Group:Health and Support Services
Objective Field:Nursing
Author:Fitzgerald, MA (Professor Mary Fitzgerald)
ID Code:64047
Year Published:2003
Deposited By:Nurse Education Unit
Deposited On:2010-06-21
Last Modified:2011-10-11
Downloads:0

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