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Measuring dementia carers' unmet need for services - an exploratory mixed method study

Citation

Stirling, C and Andrews, S and Croft, T and Vickers, J and Turner, P and Robinson, A, Measuring dementia carers' unmet need for services - an exploratory mixed method study, BMC Health Services Research, 10, (122) EJ ISSN 1472-6963 (2010) [Refereed Article]


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Copyright Statement

2010 Stirling et al; licensee BioMed Central Ltd. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/2.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.

DOI: doi:10.1186/1472-6963-10-122

Abstract

Background: To ensure carers of people with dementia receive support, community services increasingly use measures of caregiver (carer) burden to assess for unmet need. This study used Bradshaw's taxonomy of need to explore the link between measures of carer burden (normative need), service use (expressed need), and carer's stated need (felt need). Methods: This mixed method exploratory study compared measures of carer burden with community services received and unmet needs, for 20 community-dwelling carer/care-recipient pairs. Results: A simple one-item measure of carers' felt need for more services was significantly related to carer stress as measured on the GHQ-30. Qualitative data showed that there are many potential stressors for carers, other than those related to the care-giving role. We found a statistically significant rank correlation (p = 0.01) between carer's use of inhome respite and the care-recipient's cognitive and functional status which is likely to have been related to increased requirement for carer vigilance, effort and the isolation of spouse carers. Otherwise, there were no statistically significant relationships between carer burden or stress and level of service provision. Conclusion: When carers are stressed or depressed, they can recognise that they would like more help from services, even if measures of carer burden and care recipient status do not clearly indicate unmet service needs. A question designed to elicit carer' felt need may be a better indicator of service need, and a red flag for recognising growing stress in carers of people with dementia. Assessment of service needs should recognise the fallibility of carer burden measures, given that carer stress may not only come from caring for someone with dementia, but can be significantly compounded by other life situations.

Item Details

Item Type:Refereed Article
Research Division:Medical and Health Sciences
Research Group:Public Health and Health Services
Research Field:Aged Health Care
Objective Division:Health
Objective Group:Health and Support Services
Objective Field:Carer Health
Author:Stirling, C (Associate Professor Christine Stirling)
Author:Andrews, S (Dr Sharon Andrews)
Author:Vickers, J (Professor James Vickers)
Author:Turner, P (Associate Professor Paul Turner)
Author:Robinson, A (Professor Andrew Robinson)
ID Code:64007
Year Published:2010
Web of Science® Times Cited:28
Deposited By:Menzies Institute for Medical Research
Deposited On:2010-06-15
Last Modified:2011-04-29
Downloads:382 View Download Statistics

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