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Predictive Genetic Test Decisons for Huntington's Disease: Elucidating the Test/No-test Dichotomy


Taylor, SD, Predictive Genetic Test Decisons for Huntington's Disease: Elucidating the Test/No-test Dichotomy, Journal of Health Psychology: An Interdisciplinary, International Journal, 10, (4) pp. 597-612. ISSN 1359-1053 (2005) [Refereed Article]

DOI: doi:10.1177/135910530503442


Predictive genetic testing for serious, mature-onset genetic illness represents a unique context in health decision making. This article presents findings from an exploratory qualitative Australian-based study into the decision making of individuals at risk for Huntington's disease (HD) with regard to predictive genetic testing. Sixteen in-depth interviews were conducted with a range of at-risk individuals. Data analysis revealed four discrete decision-making positions rather than a 'to test' or 'not to test' dichotomy. A conceptual dimension of (non-)openness and (non-)engagement characterized the various decisions. Processes of decision making and a concept of 'test readiness' were identified. Findings from this research, while not generalizable, are discussed in relation to theoretical frameworks and stage models of health decision making, as well as possible clinical implications. Copyright © 2005 SAGE Publications.

Item Details

Item Type:Refereed Article
Keywords:decison making, Huntington's disease, predictive testing, stage theory
Research Division:Health Sciences
Research Group:Health services and systems
Research Field:Health services and systems not elsewhere classified
Objective Division:Health
Objective Group:Public health (excl. specific population health)
Objective Field:Behaviour and health
UTAS Author:Taylor, SD (Professor Sandy Taylor)
ID Code:58004
Year Published:2005
Web of Science® Times Cited:14
Deposited By:Sociology and Social Work
Deposited On:2009-09-01
Last Modified:2009-10-19

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