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Human genetic databanks in Australia: indications of inconsistency and confusion


Stranger, MJA and Bell, EJ and Nicol, D and Otlowski, MFA and Chalmers, DRC, Human genetic databanks in Australia: indications of inconsistency and confusion, New Genetics and Society, 27, (4) pp. 311-321. ISSN 1463-6778 (2008) [Refereed Article]

DOI: doi:10.1080/14636770802485400


This paper reports on a survey of human biotechnology organizations in Australia. The study provides insights into the nature, use and practices involved with human genetic databanking in the country. The survey was conducted at a time when databanks were becoming increasingly important to an expanding genomics industry, and while the nature and extent of industry regulation was being debated. The data revealed a surprising level of confusion and inconsistency in the interpretation of terminology and in ethical practice, even among those organizations subject to the relevant government ethics guidelines. It is argued that despite the extensive level of public consultation, recommendations for reform and actual reform in the intervening years, human genetic databanking remains an under-regulated sector of the human biotechnology industry in Australia, and at least as far as the private sector is concerned, will remain so in the foreseeable future. © 2008 Taylor & Francis.

Item Details

Item Type:Refereed Article
Research Division:Law and Legal Studies
Research Group:Public law
Research Field:Public law not elsewhere classified
Objective Division:Law, Politics and Community Services
Objective Group:Justice and the law
Objective Field:Justice and the law not elsewhere classified
UTAS Author:Stranger, MJA (Dr Mark Stranger)
UTAS Author:Bell, EJ (Associate Professor Erica Bell)
UTAS Author:Nicol, D (Professor Dianne Nicol)
UTAS Author:Otlowski, MFA (Professor Margaret Otlowski)
UTAS Author:Chalmers, DRC (Professor Don Chalmers)
ID Code:53444
Year Published:2008
Web of Science® Times Cited:5
Deposited By:Law
Deposited On:2008-12-09
Last Modified:2014-10-07

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