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Development of a Core Set of Domains for Data Collection in Cohorts of Patients with Ankylosing Spondylitis Receiving Anti-Tumor Necrosis Factor-alpha Therapy

Citation

Zochling, JM and Sieper, J and van der Heijde, D and Braun, J, Development of a Core Set of Domains for Data Collection in Cohorts of Patients with Ankylosing Spondylitis Receiving Anti-Tumor Necrosis Factor-alpha Therapy, Journal of Rheumatology, 35, (6) pp. 1079-1082. ISSN 0315-162X (2008) [Refereed Article]

Abstract

Objective. To create a core set of measurement concepts for use in the creation and maintenance of anti-tumor necrosis factor-α patient registries in ankylosing spondylitis (AS). Methods. A Delphi-based approach was used to identify elements that best identify a patient's clinical state, disease progression, and potential drug-related toxicities. Decision-making was based on systematic literature reviews and clinical experience and expertise. Results. A core set of measurement domains was defined including disease activity and physical function outcomes. Comparison with domains used in existing AS registries showed excellent agreement with current practice. Conclusion. This core set is a basis for data collection across AS populations.

Item Details

Item Type:Refereed Article
Research Division:Medical and Health Sciences
Research Group:Clinical Sciences
Research Field:Rheumatology and Arthritis
Objective Division:Health
Objective Group:Clinical Health (Organs, Diseases and Abnormal Conditions)
Objective Field:Skeletal System and Disorders (incl. Arthritis)
UTAS Author:Zochling, JM (Dr Jane Zochling)
ID Code:52483
Year Published:2008
Web of Science® Times Cited:16
Deposited By:Menzies Institute for Medical Research
Deposited On:2008-07-22
Last Modified:2009-08-06
Downloads:0

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