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Donor Perspectives on Issues Associated with Donation of Genetic Samples and Information: An Australian Viewpoint
Citation
Otlowski, MFA, Donor Perspectives on Issues Associated with Donation of Genetic Samples and Information: An Australian Viewpoint, Journal of bioethical inquiry, 4, (2) pp. 135-150. ISSN 1176-7529 (2007) [Refereed Article]
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Copyright Statement
The original publication is available at www.springerlink.com
DOI: doi:10.1007/s11673-007-9055-4
Abstract
This paper provides a legal overview of key issues associated with donation of genetic samples and information from a donor perspective. In particular, it addresses the property status of samples as well as issues in respect of consent, privacy, commercialisation and benefit sharing. The paper highlights the need for appropriate protection and safeguards for individuals, but also, importantly, for understanding what donors actually think and want in terms of genetic research and the use of their samples and information. The paper seeks to emphasise the importance of transparency and accountability in the conduct of research in order to maximise donor participation and confidence and public trust in general.
Item Details
Item Type: | Refereed Article |
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Keywords: | Tissue and organ procurement - Genetic research - Tissue banks - Trust - Public policy |
Research Division: | Law and Legal Studies |
Research Group: | Public law |
Research Field: | Public law not elsewhere classified |
Objective Division: | Law, Politics and Community Services |
Objective Group: | Justice and the law |
Objective Field: | Justice and the law not elsewhere classified |
UTAS Author: | Otlowski, MFA (Professor Margaret Otlowski) |
ID Code: | 49703 |
Year Published: | 2007 |
Web of Science® Times Cited: | 8 |
Deposited By: | Law |
Deposited On: | 2007-08-01 |
Last Modified: | 2010-05-14 |
Downloads: | 1 View Download Statistics |
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