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Donor Perspectives on Issues Associated with Donation of Genetic Samples and Information: An Australian Viewpoint
This paper provides a legal overview of key issues associated with donation of genetic samples and information from a donor perspective. In particular, it addresses the property status of samples as well as issues in respect of consent, privacy, commercialisation and benefit sharing. The paper highlights the need for appropriate protection and safeguards for individuals, but also, importantly, for understanding what donors actually think and want in terms of genetic research and the use of their samples and information. The paper seeks to emphasise the importance of transparency and accountability in the conduct of research in order to maximise donor participation and confidence and public trust in general.
History
Publication title
Journal of bioethical inquiryVolume
4Pagination
135-150ISSN
1176-7529Department/School
Faculty of LawPublisher
SpringerPlace of publication
The NetherlandsRights statement
The original publication is available at www.springerlink.comRepository Status
- Restricted