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This paper provides a legal overview of key issues associated with donation of genetic samples and information from a donor perspective. In particular, it addresses the property status of samples as well as issues in respect of consent, privacy, commercialisation and benefit sharing. The paper highlights the need for appropriate protection and safeguards for individuals, but also, importantly, for understanding what donors actually think and want in terms of genetic research and the use of their samples and information. The paper seeks to emphasise the importance of transparency and accountability in the conduct of research in order to maximise donor participation and confidence and public trust in general.

Item Type:	Refereed Article
Keywords:	Tissue and organ procurement - Genetic research - Tissue banks - Trust - Public policy
Research Division:	Law and Legal Studies
Research Group:	Public law
Research Field:	Public law not elsewhere classified
Objective Division:	Law, Politics and Community Services
Objective Group:	Justice and the law
Objective Field:	Justice and the law not elsewhere classified
UTAS Author:	Otlowski, MFA (Professor Margaret Otlowski)
ID Code:	49703
Year Published:	2007
Web of Science® Times Cited:	8
Deposited By:	Law
Deposited On:	2007-08-01
Last Modified:	2010-05-14
Downloads:	1 View Download Statistics