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Donor Perspectives on Issues Associated with Donation of Genetic Samples and Information: An Australian Viewpoint

journal contribution
posted on 2023-05-16, 20:54 authored by Margaret OtlowskiMargaret Otlowski
This paper provides a legal overview of key issues associated with donation of genetic samples and information from a donor perspective. In particular, it addresses the property status of samples as well as issues in respect of consent, privacy, commercialisation and benefit sharing. The paper highlights the need for appropriate protection and safeguards for individuals, but also, importantly, for understanding what donors actually think and want in terms of genetic research and the use of their samples and information. The paper seeks to emphasise the importance of transparency and accountability in the conduct of research in order to maximise donor participation and confidence and public trust in general.

History

Publication title

Journal of bioethical inquiry

Volume

4

Pagination

135-150

ISSN

1176-7529

Department/School

Faculty of Law

Publisher

Springer

Place of publication

The Netherlands

Rights statement

The original publication is available at www.springerlink.com

Repository Status

  • Restricted

Socio-economic Objectives

Justice and the law not elsewhere classified

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