eCite Digital Repository

Investigating Genetic Discrimination in Australia: Perceptions and Experiences of Clinical Genetics Service Clients Regarding Coercion to Test, Insurance and Employment

Citation

Taylor, SD and Treloar, S and Barlow-Stewart, K and Otlowski, MFA and Stranger, MJA, Investigating Genetic Discrimination in Australia: Perceptions and Experiences of Clinical Genetics Service Clients Regarding Coercion to Test, Insurance and Employment, Australian Journal of Emerging Technologies and Society, 5, (2) pp. 83. ISSN 1449-0706 (2007) [Refereed Article]

Abstract

Survey and interview-based findings from the Consumer Study of the Australian Genetic Discrimination Project (GDP) are reported. These involve perceptions and experiences of clinical genetics clients regarding coercion to undertake genetic testing and insurance and employment-related issues. Genetic discrimination is defined as the differential treatment of asymptomatic individuals because of actual or presumed genetic differences. Eligible adults (n=2667) who had requested predictive testing for designated mature-onset conditions, 1998 to 2003, were surveyed; 951/1185 respondents met asymptomatic inclusion criteria. Neurological disorders and familial cancers were relevant to the majority. Sources of coercion, where reported, included family members, doctors, geneticists/counsellors and life insurers. Insurance and employment related issues were raised; some respondents reported avoiding or being advised not to apply for life insurance. Interview data further elucidate context and impact of coercion and/or negative treatment. The experiences of respondents where neurological conditions were relevant differed from others. Implications of the study are discussed. © Australian Journal of Emerging Technologies and Society 2007.

Item Details

Item Type:Refereed Article
Research Division:Law and Legal Studies
Research Group:Law
Research Field:Law not elsewhere classified
Objective Division:Law, Politics and Community Services
Objective Group:Justice and the Law
Objective Field:Justice and the Law not elsewhere classified
Author:Taylor, SD (Professor Sandy Taylor)
Author:Otlowski, MFA (Professor Margaret Otlowski)
Author:Stranger, MJA (Dr Mark Stranger)
ID Code:48672
Year Published:2007
Deposited By:Law
Deposited On:2007-08-01
Last Modified:2009-11-10
Downloads:0

Repository Staff Only: item control page