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Barriers to the Provision of Care for People with Dementia and their carers in a Rural Community


Hansen, EC and Robinson, A and Mudge, P and Crack, EG, Barriers to the Provision of Care for People with Dementia and their carers in a Rural Community, Australian Journal of Primary Health, 11, (1) pp. 72-79. ISSN 1448-7527 (2005) [Refereed Article]

DOI: doi:10.1071/PY05010


This article describes results from a community initiated qualitative research project investigating barriers to the provision of care for people with dementia (PWD) and their carers. The study was conducted in a rural remote Tasmanian community ("Cape Coastal"). Focus group discussions were held with family member carers of PWD, members of the Aged Care Assessment Team (ACAT), nurses employed in the local hospital and a local nursing home, community health nurses and local general practitioners. In addition, two semi-structured interviews were conducted with a dementia support worker allocated to service the region and a single family member carer. Barriers to the effective provision of care for PWD and their carers were identified. These were: distance and isolation; perceptions of geographic and professional boundaries including issues of medical dominance; and gaps in health care provider and carers' knowledge about dementia and dementia services. These results demonstrate that while Cape Coastal has many points in common with other rural and remote communities in Australia and in Canada and the United States (Australian Institute of Health and Welfare [AIHW], 2002), it is important to recognise local context when planning and providing services for PWD and other chronic diseases.

Item Details

Item Type:Refereed Article
Research Division:Health Sciences
Research Group:Health services and systems
Research Field:Primary health care
Objective Division:Health
Objective Group:Specific population health (excl. Indigenous health)
Objective Field:Health related to ageing
UTAS Author:Hansen, EC (Dr Emily Hansen)
UTAS Author:Robinson, A (Professor Andrew Robinson)
UTAS Author:Mudge, P (Professor Peter Mudge)
UTAS Author:Crack, EG (Mr Geoff Crack)
ID Code:32789
Year Published:2005
Deposited By:General Practice
Deposited On:2005-08-01
Last Modified:2006-06-07

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