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Methodological Considerations in the Study of Genetic Discrimination


Treloar, S and Taylor, SD and Otlowski, MFA and Barlow-Stewart, K and Stranger, MJA and Chenoweth, K, Methodological Considerations in the Study of Genetic Discrimination, Community Genetics, 7, (4) pp. 161-168. ISSN 1422-2795 (2004) [Refereed Article]

DOI: doi:10.1159/000082254


The potential significance and dimensions of genetic discrimination have been described extensively in published literature, but epidemiological and verified case data are limited. Obtaining unbiased data from individuals about discrimination which has been based on erroneous or unjustifiable assumptions about their genetic predispositions poses unique challenges. Through review and discussion of research literature, we identify methodological considerations for collecting valid epidemiological data on genetic discrimination from individuals in the community; in particular, we consider issues which relate to sampling, selection and response. We identify issues to promote sound study design, with particular attention to verification of genetic discrimination, and highlight the importance of clinical and genetic knowledge of complex genotype-phenotype relationships. Copyright © 2004 S. Karger AG, Basel.

Item Details

Item Type:Refereed Article
Research Division:Law and Legal Studies
Research Group:Public law
Research Field:Public law not elsewhere classified
Objective Division:Law, Politics and Community Services
Objective Group:Justice and the law
Objective Field:Justice and the law not elsewhere classified
UTAS Author:Taylor, SD (Professor Sandy Taylor)
UTAS Author:Otlowski, MFA (Professor Margaret Otlowski)
UTAS Author:Stranger, MJA (Dr Mark Stranger)
ID Code:31232
Year Published:2004
Web of Science® Times Cited:17
Deposited By:Law
Deposited On:2004-08-01
Last Modified:2010-06-05

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