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Investigating genetic discrimination in Australia: opportunities and challenges in the early stages


Taylor, SD and Otlowski, MFA and Barlow-Stewart, K and Treloar, S and Stranger, MJA and Chenoweth, K, Investigating genetic discrimination in Australia: opportunities and challenges in the early stages, New Genetics and Society, 23, (2) pp. 225-239. ISSN 1463-6778 (2004) [Refereed Article]

DOI: doi:10.1080/1463677042000237053


Genetic discrimination, defined as the differential treatment of individuals or their relatives on the basis of actual or presumed genetic differences, is an emerging issue of interest in academic, clinical, social and legal contexts. While its potential significance has been discussed widely, verified empirical data are scarce. Genetic discrimination is a complex phenomenon to describe and investigate, as evidenced by the recent Australian Law Reform Commission inquiry in Australia. The authors research project, which commenced in 2002, aims to document the multiple perspectives and experiences regarding genetic discrimination in Australia and inform future policy development and law reform. Data are being collected from consumers, employers, insurers and the legal system. Attempted verification of alleged accounts of genetic discrimination will be a novel feature of the research. This paper overviews the early stages of the research, including conceptual challenges and their methodological implications.

Item Details

Item Type:Refereed Article
Research Division:Law and Legal Studies
Research Group:Public law
Research Field:Public law not elsewhere classified
Objective Division:Law, Politics and Community Services
Objective Group:Justice and the law
Objective Field:Justice and the law not elsewhere classified
UTAS Author:Otlowski, MFA (Professor Margaret Otlowski)
UTAS Author:Stranger, MJA (Dr Mark Stranger)
ID Code:31130
Year Published:2004
Web of Science® Times Cited:21
Deposited By:Law
Deposited On:2004-08-01
Last Modified:2010-06-18

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