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Genetic medicine: an experiment in community-expert interaction


Schibeci, R and Barns, I and Shaw, R and Davison, AG, Genetic medicine: an experiment in community-expert interaction, Journal of Medical Ethics, 25, (4) pp. 335-339. ISSN 0306-6800 (1999) [Refereed Article]

DOI: doi:10.1136/jme.25.4.335


This project tested a two-way model of communication between lay groups and experts about genetic medicine in Perth, Western Australia. Focus groups discussion with community group participants was followed by a communication workshop between community group participants and experts. Four groups of concerns or themes emerged from discussion: clinical considerations; legislative concerns; research priorities, and ethical and wider considerations. Community group concerns are not always met by the actions of 'experts'. This is, in part, because of the differing life-worlds of each group. However, the communication workshop showed the potential of two-way communication for both lay and expert members in understanding the others' viewpoint. Further, the approach developed here offers one possible way for community groups to participate in a substantial way in policy formulation processes.

Item Details

Item Type:Refereed Article
Research Division:Human Society
Research Group:Sociology
Research Field:Sociology and social studies of science and technology
Objective Division:Culture and Society
Objective Group:Ethics
Objective Field:Bioethics
UTAS Author:Davison, AG (Associate Professor Aidan Davison)
ID Code:29508
Year Published:1999
Web of Science® Times Cited:12
Deposited By:Geography and Environmental Studies
Deposited On:2004-07-18
Last Modified:2004-07-18

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