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Genetic medicine: an experiment in community-expert interaction
journal contribution
posted on 2023-05-16, 14:56 authored by Schibeci, R, Barns, I, Shaw, R, Aidan DavisonAidan DavisonThis project tested a two-way model of communication between lay groups and experts about genetic medicine in Perth, Western Australia. Focus groups discussion with community group participants was followed by a communication workshop between community group participants and experts. Four groups of concerns or themes emerged from discussion: clinical considerations; legislative concerns; research priorities, and ethical and wider considerations. Community group concerns are not always met by the actions of 'experts'. This is, in part, because of the differing life-worlds of each group. However, the communication workshop showed the potential of two-way communication for both lay and expert members in understanding the others' viewpoint. Further, the approach developed here offers one possible way for community groups to participate in a substantial way in policy formulation processes.
History
Publication title
Journal of Medical EthicsVolume
25Issue
4Pagination
335-339ISSN
0306-6800Department/School
School of Geography, Planning and Spatial SciencesPublisher
B M J Publishing GroupPlace of publication
United KingdomRepository Status
- Restricted