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When is public private? Tweets, privacy and consent in health research

Citation

Kaphle, S and Kornhaber, R and Hunt, S and Watson, D and Cleary, M, When is public private? Tweets, privacy and consent in health research, Nurse Education in Practice, 63 Article 103396. ISSN 1471-5953 (2022) [Refereed Article]


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DOI: doi:10.1016/j.nepr.2022.103396

Abstract

Online social media platforms provide opportunities for the global community to share and express their views, opinions, reactions, and feelings openly. The use of social media for the purpose of information sharing surged during the COVID-19 pandemic due to mandated physical distancing requirements. This is a seemingly consensual catharsis at a time of heightened need for alternative social activity and critical information sharing. Communication on open social media platforms has created opportunities for researchers to access and analyse rich, publicly available data to study a range of topics and issues. The creation of this abundant public data has also led to fundamental methodological and ethical challenges for social science researchers. Namely, is the use of this public data for research a breach of privacy and confidentiality? Are social media users becoming involuntary research participants as their communications and personal information are mined and published on without participant insight and informed consent? In this discussion, we aim to highlight some of the critical methodological and ethical issues that researchers must consider while using Twitter as a data source to publish from.

Item Details

Item Type:Refereed Article
Keywords:social media, Twitter, consent, healthcare
Research Division:Information and Computing Sciences
Research Group:Library and information studies
Research Field:Information governance, policy and ethics
Objective Division:Culture and Society
Objective Group:Ethics
Objective Field:Social ethics
UTAS Author:Kornhaber, R (Dr Rachel Kornhaber)
ID Code:154728
Year Published:2022
Deposited By:Nursing
Deposited On:2022-12-29
Last Modified:2023-01-03
Downloads:0

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