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The stigma of identifying as having a lived experience runs before me: challenges for lived experience roles


Byrne, L and Roper, C and Happell, B and Reid-Searl, K, The stigma of identifying as having a lived experience runs before me: challenges for lived experience roles, Journal of Mental Health, 28, (3) pp. 260-266. ISSN 1360-0567 (2019) [Refereed Article]

Copyright Statement

2016 Informa UK Limited, trading as Taylor & Francis Group.

DOI: doi:10.1080/09638237.2016.1244715


Background: Lived experience practitioners can contribute to improved outcomes for people with mental illness, supplementing traditional mental health services and reducing health care costs. However, lived experience practitioners frequently face stigma and discrimination within their work roles.

Aim: To understand the impact of stigma and discrimination on the effectiveness of lived experience roles from the perspective of lived experience practitioners.

Methods:In-depth interviews were conducted with 13 lived experience practitioners within a grounded theory study.

Results: Issues of stigma and discrimination were identified as a core category of this study. Participants described stigma and discrimination so prevalent as to be considered a "normal" part of their working life. Professional isolation and attitudinal barriers from colleagues were seen to inhibit the effectiveness of lived experience roles.

Conclusions: Lived experience practitioners can provide a vital contribution to stigma reduction broadly, however, the stigma and discrimination they face within work roles must be addressed to allow this contribution to be effective.

Item Details

Item Type:Refereed Article
Keywords:Consumers; discrimination; lived experience practitioners; mental health services; peer work; stigma
Research Division:Health Sciences
Research Group:Health services and systems
Research Field:Mental health services
Objective Division:Health
Objective Group:Provision of health and support services
Objective Field:Nursing
UTAS Author:Reid-Searl, K (Professor Kerry Reid-Searl)
ID Code:153908
Year Published:2019
Web of Science® Times Cited:27
Deposited By:Nursing
Deposited On:2022-10-14
Last Modified:2022-11-28

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