University of Tasmania
Browse

File(s) under permanent embargo

Participant experiences of intervention to detect and manage familial hypercholesterolaemia in Australian general practice

journal contribution
posted on 2023-05-21, 14:05 authored by Skoss, R, Brett, T, Bulsara, C, Janette RadfordJanette Radford, Heal, C, Gill, G, Hespe, C, Vargas-Garcia, C, Li, IW, Sullivan, DR, Vickery, AW, Arnold-Reed, DE, Watts, GF

Background and Objectives:General practitioners (GPs) are ideally placed to have a much larger role in detection and management of familial hypercholesterolaemia (FH) among their patients. The aim of this study was to seek the reflections of practice staff and newly diagnosed patients with FH on the implementation of an FH model of care in the general practice setting.

Methods:Qualitative descriptive methodology was used. Interviews were conducted with 36 practice staff and 51 patients from 15 practices participating in the study.

Results:Data were analysed thematically and coded into themes - efficacy of GP training, screening for FH, model of care, patient awareness and cascade testing.

Disscussion:Findings reflect the real-world clinical experience of Australian general practice and the acceptability of the model of care for both patients with FH and practice staff. Patient health literacy is a barrier to both management of FH and cascade testing. A systematic approach to cascade testing is required.

Funding

National Health & Medical Research Council

Deakin University

James Cook University

Primary Health Tasmania

University of Notre Dame Australia

University of Western Australia

History

Publication title

Australian journal of general practice

Volume

51

Issue

9

Pagination

687-694

ISSN

2208-7958

Department/School

Tasmanian School of Medicine

Publisher

Royal Australian College of General Practitioners

Place of publication

East Melbourne, Victoria

Rights statement

© The Royal Australian College of General Practitioners 2022

Repository Status

  • Restricted

Socio-economic Objectives

Health system performance (incl. effectiveness of programs); Primary care; Preventive medicine

Usage metrics

    University Of Tasmania

    Exports

    RefWorks
    BibTeX
    Ref. manager
    Endnote
    DataCite
    NLM
    DC