Skoss, R and Brett, T and Bulsara, C and Radford, JC and Heal, C and Gill, G and Hespe, C and Vargas-Garcia, C and Li, IW and Sullivan, DR and Vickery, AW and Arnold-Reed, DE and Watts, GF, Participant experiences of intervention to detect and manage familial hypercholesterolaemia in Australian general practice, Australian journal of general practice, 51, (9) pp. 687-694. ISSN 2208-7958 (2022) [Refereed Article]
© The Royal Australian College of General Practitioners 2022
Official URL: https://www1.racgp.org.au/ajgp/2022/september/inte...
Background and Objectives:General practitioners (GPs) are ideally placed to have a much larger role in detection and management of familial hypercholesterolaemia (FH) among their patients. The aim of this study was to seek the reflections of practice staff and newly diagnosed patients with FH on the implementation of an FH model of care in the general practice setting.
Methods:Qualitative descriptive methodology was used. Interviews were conducted with 36 practice staff and 51 patients from 15 practices participating in the study.
Results:Data were analysed thematically and coded into themes - efficacy of GP training, screening for FH, model of care, patient awareness and cascade testing.
Disscussion:Findings reflect the real-world clinical experience of Australian general practice and the acceptability of the model of care for both patients with FH and practice staff. Patient health literacy is a barrier to both management of FH and cascade testing. A systematic approach to cascade testing is required.
|Item Type:||Refereed Article|
|Keywords:||General Practice; Familial Hypercholesterolaemia; implementation|
|Research Division:||Health Sciences|
|Research Group:||Health services and systems|
|Research Field:||General practice|
|Objective Group:||Evaluation of health and support services|
|Objective Field:||Health system performance (incl. effectiveness of programs)|
|UTAS Author:||Radford, JC (Professor Jan Radford)|
|Funding Support:||National Health and Medical Research Council (GNT1142883)|
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