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Patients’ and carers’ experience of dementia and memory services: Early findings from the Australian Dementia Network (ADNeT) Registry


Lin, X and Wallis, K and Brodaty, H and Kain, B and Cooper, S and Fitzpatrick, J and Jeon, YH and Naismith, S and Lambourne, S and Alty, J and Low, LF and Phillipson, L and McAloney, K and Ward, SA, Patients' and carers' experience of dementia and memory services: Early findings from the Australian Dementia Network (ADNeT) Registry, Australian Dementia Research Forum 2022 (ADFR), 30-31 May 2022, Online (2022) [Conference Extract]

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• The Australian Dementia Network (ADNeT) Registry is a clinical quality registry (CQR) for people newly diagnosed with dementia and mild cognitive impairment (MCI). It collects and analyses data to monitor and drive quality improvements in clinical care and patient outcomes. The registry has been implemented within dementia and memory services across Australia since 2020.

• Including patient-reported measures is a priority for CQRs and enables data collection on outcomes that matter most to patients and their lived experience. Such data are important in understanding patients’ experience of clinical services and help to inform quality improvement initiatives.

• To our knowledge, the ADNeT Registry is the only dementia CQR that includes patient- and carer- reported measures.

Item Details

Item Type:Conference Extract
Keywords:dementia, clinic, diagnosis, carer, patient, ADNET
Research Division:Biomedical and Clinical Sciences
Research Group:Clinical sciences
Research Field:Geriatrics and gerontology
Objective Division:Health
Objective Group:Clinical health
Objective Field:Diagnosis of human diseases and conditions
UTAS Author:Alty, J (Associate Professor Jane Alty)
ID Code:150142
Year Published:2022
Deposited By:Wicking Dementia Research and Education Centre
Deposited On:2022-05-30
Last Modified:2022-05-30

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