Patients’ and carers’ experience of dementia and memory services: Early findings from the Australian Dementia Network (ADNeT) Registry

• The Australian Dementia Network (ADNeT) Registry is a clinical quality registry (CQR) for people newly diagnosed with dementia and mild cognitive impairment (MCI). It collects and analyses data to monitor and drive quality improvements in clinical care and patient outcomes. The registry has been implemented within dementia and memory services across Australia since 2020.

• Including patient-reported measures is a priority for CQRs and enables data collection on outcomes that matter most to patients and their lived experience. Such data are important in understanding patients’ experience of clinical services and help to inform quality improvement initiatives.

• To our knowledge, the ADNeT Registry is the only dementia CQR that includes patient- and carer- reported measures.