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MS Nurse Care in Australia: Patterns of access and impact on health outcomes
Chen, J and Campbell, J and van der Mei, I and Bardsley, B and Shapland, S and Burke, T and Taylor, B, MS Nurse Care in Australia: Patterns of access and impact on health outcomes, Multiple Sclerosis Australia, Australia (2022) [Contract Report]
|PDF (Final Report submitted to Multiple Sclerosis Australia)|
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MS is the most common chronic neurological disease diagnosed in young Australian adults, affecting more than 25,000 people. With onset most commonly occurring between the ages of 20 and 40 years, a diagnosis of MS can be devastating. This disease most commonly strikes at a highly productive time of life, when study, career-building, relationship development and family-making are the focus, and the unpredictable nature of the disease can sabotage plans and disrupt dreams. At this time of uncertainty, the input of an MS Nurse is arguably of most importance.
The MS Nurse provides education, counselling, and compassion, supporting people with MS to understand and live with this complex disease, assisting people with accessing relevant support services, and empowering people through informed and shared decision-making about treatment, lifestyle, and research choices.
This critical and empowering partnership continues from diagnosis to relapse management and beyond, with the provision of medication information, safety vigilance programs, counselling, education, and symptom management throughout the life trajectory.
|Item Type:||Contract Report|
|Keywords:||multiple sclerosis, multiple sclerosis nurses, MS Nurses, epidemiology|
|Research Division:||Health Sciences|
|Research Field:||Epidemiology not elsewhere classified|
|Objective Group:||Evaluation of health and support services|
|Objective Field:||Health system performance (incl. effectiveness of programs)|
|UTAS Author:||Chen, J (Miss Jing Chen)|
|UTAS Author:||Campbell, J (Dr Julie Campbell)|
|UTAS Author:||van der Mei, I (Professor Ingrid van der Mei)|
|UTAS Author:||Taylor, B (Professor Bruce Taylor)|
|Deposited By:||Menzies Institute for Medical Research|
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