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Principles and philosophies for speech and language therapists working with people with primary progressive aphasia: an international expert consensus

Citation

Volkmer, A and Cartwright, J and Ruggero, L and Beales, A and Gallee, J and Grasso, S and Henry, M and Jokel, R and Kindell, J and Khayum, R and Pozzebon, M and Rochon, E and Taylor-Rubin, C and Townsend, R and Walker, F and Beeke, S and Hersh, D, Principles and philosophies for speech and language therapists working with people with primary progressive aphasia: an international expert consensus, Disability and Rehabilitation ISSN 0963-8288 (2022) [Refereed Article]


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Copyright Statement

Copyright 2022 the authors. Licensed under Creative Commons Attribution 4.0 International (CC BY 4.0) https://creativecommons.org/licenses/by/4.0/

DOI: doi:10.1080/09638288.2022.2051080

Abstract

Purpose

Primary progressive aphasia (PPA) is a language-led dementia associated with Alzheimer’s pathology and fronto-temporal lobar degeneration. Multiple tailored speech and language interventions have been developed for people with PPA. Speech and language therapists/speech-language pathologists (SLT/Ps) report lacking confidence in identifying the most pertinent interventions options relevant to their clients living with PPA during their illness trajectory.

Materials and methods

The aim of this study was to establish a consensus amongst 15 clinical-academic SLT/Ps on best practice in selection and delivery of speech and language therapy interventions for people with PPA. An online nominal group technique (NGT) and consequent focus group session were held. NGT rankings were aggregated and focus groups video recorded, transcribed, and reflexive thematic analysis undertaken.

Results

The results of the NGT identified 17 items. Two main themes and seven further subthemes were identified in the focus groups. The main themes comprised (1) philosophy of person-centredness and (2) complexity. The seven subthemes were knowing people deeply, preventing disasters, practical issues, professional development, connectedness, barriers and limitations, and peer support and mentoring towards a shared understanding.

Conclusions

This study describes the philosophy of expert practice and outlines a set of best practice principles when working with people with PPA.

Item Details

Item Type:Refereed Article
Keywords:primary progressive aphasia, speech pathology, treatment principles, speech and language therapy, speech-language pathology, consensus, best practice principles
Research Division:Health Sciences
Research Group:Allied health and rehabilitation science
Research Field:Speech pathology
Objective Division:Health
Objective Group:Provision of health and support services
Objective Field:Allied health therapies (excl. mental health services)
UTAS Author:Cartwright, J (Dr Jade Cartwright)
ID Code:149911
Year Published:2022
Deposited By:Health Sciences
Deposited On:2022-04-28
Last Modified:2022-05-17
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