eCite Digital Repository

Exploring the complexity of implementing National Disability Insurance Scheme plans for adults with intellectual disability: parentsí perspectives

Citation

Lloyd, J and Moni, K and Cuskelly, M and Jobling, A, Exploring the complexity of implementing National Disability Insurance Scheme plans for adults with intellectual disability: parents' perspectives, Journal of Intellectual & Developmental Disability, 46, (3) pp. 281-290. ISSN 1366-8250 (2021) [Refereed Article]

Copyright Statement

Copyright 2020 Australasian Society for Intellectual Disability, Inc.

DOI: doi:10.3109/13668250.2020.1843764

Abstract

Background:

With the introduction of the National Disability Insurance Scheme (NDIS), creation and implementation of participantsí plans are becoming a research focus. As many families facilitate the implementation of plans, it is important to understand the enablers and barriers to this process.

Method:

This study investigated the experiences of 20 family groups with adult participants with intellectual disability as they implemented their NDIS plans. Data were collected through semi-structured interviews and analysed qualitatively.

Results:

Results are reported in themes of increased opportunities, navigating bureaucracy, building partnerships and impact on families.

Conclusions:

Implementing NDIS plans was complex. Funding was appreciated and enabled some adults to work towards their goals. Bureaucracy and the availability of suitable services and support workers were seen to be barriers. Further investigation about how families balance multiple roles as they work with their adult during planning and implementation is needed. Evaluations of the NDIS should include family experiences.

Item Details

Item Type:Refereed Article
Keywords:disability, parents, National Disability Insurance Scheme (NIDS), adults with intellectual disability, person-centred planning, families, parents
Research Division:Human Society
Research Group:Policy and administration
Research Field:Social policy
Objective Division:Law, Politics and Community Services
Objective Group:Community services
Objective Field:Ability and disability
UTAS Author:Cuskelly, M (Professor Monica Cuskelly)
ID Code:146348
Year Published:2021 (online first 2020)
Deposited By:Education
Deposited On:2021-09-01
Last Modified:2021-10-28
Downloads:0

Repository Staff Only: item control page