145687 - Pathways processes and protections - AAM.pdf (917.11 kB)
Pathways, processes and protections: Australia's clinical and direct-to-consumer genetic testing spaces
journal contribution
posted on 2023-05-21, 01:17 authored by Charbonneau, J, Dianne NicolDianne NicolHealth-related genetic testing, once exclusively within the medical space, is now available within the commercial space. This paradigm shift from medical to consumer presents challenges to regulators, health care professionals and individuals. This section reports on pathways, processes and protections afforded to Australians whether genetic test results are provided by medical professionals or commercial players. While a complex web of protections is available within Australia's medical space, those accessing commercial testing rely on the same protections afforded all consumers in all marketplace transactions. There is also potential for these two initially bifurcated pathways to merge, either by business model or individual choice. Individuals pursuing commercial options obtain personal genetic information, which they self-interpret and, if they choose, share with family, medical professionals and online. While this section focuses on health-related genetic testing, it gives insight into what will undoubtedly be continued incursions into the medical space by commercial players.
Funding
Australian Research Council
History
Publication title
Journal of Law and MedicineVolume
28Pagination
370-388ISSN
1320-159XDepartment/School
Faculty of LawPublisher
Lawbook Co.Place of publication
AustraliaRights statement
Copyright 2021 Thomson Reuters AustraliaRepository Status
- Open