eCite Digital Repository

People Centeredness, chronic conditions and diversity sensitive eHealth: exploring emancipation of the 'health care system' and the 'patient' in health informatics

Citation

Bolin, L and Bertelsen, PS and Kayser, L and Turner, P and Villumsen, S and Nohr, C, People Centeredness, chronic conditions and diversity sensitive eHealth: exploring emancipation of the 'health care system' and the 'patient' in health informatics, Life, 10, (12) Article 329. ISSN 2075-1729 (2020) [Refereed Article]

Copyright Statement

Copyright unknown

DOI: doi:10.3390/life10120329

Abstract

Health care systems struggle to consistently deliver integrated high-quality, safe, and patient-centered care to all in an economically sustainable manner. Inequity of access to health care services and variation in diagnostic and treatment outcomes are common. Further, as health care systems become ever more complex, iatrogenesis and counter productivity have emerged as real dangers. In exploring this paradox, this paper considers a subset of those in society living with chronic conditions. Their attributes and circumstances have led to them being marginalized or excluded from ‘end-user’ engagement and/or from their requirements being incorporated into technology supported chronic disease management initiatives. Significantly, these citizens are often the most vulnerable and socially disadvantaged and tend to achieve poorer results and cost more per capita than the ‘average patient’ in their interactions with the health care system. Critically, this paper argues that a truly people-centered technology supported chronic care system can only be designed by understanding and responding to the needs, attributes and capabilities of the most vulnerable in society. This paper suggests innovative ways of supporting interactions with these ‘end-users’ and highlights how reflection on these approaches can contribute to emancipating the health system to move towards more socially inclusive eHealth solutions.

Item Details

Item Type:Refereed Article
Keywords:eHealth, end-users, chronic disease, participatory design, socio-technical systems, diversity in care
Research Division:Information and Computing Sciences
Research Group:Information systems
Research Field:Information systems user experience design and development
Objective Division:Health
Objective Group:Evaluation of health and support services
Objective Field:Health inequalities
UTAS Author:Turner, P (Associate Professor Paul Turner)
ID Code:142093
Year Published:2020
Deposited By:Information and Communication Technology
Deposited On:2020-12-11
Last Modified:2021-02-12
Downloads:0

Repository Staff Only: item control page