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How can we improve patient-centered care of motor neuron disease?


Hogden, A and Paynter, C and Hutchinson, K, How can we improve patient-centered care of motor neuron disease?, Neurodegenerative Disease Management, 10, (2) pp. 95-101. ISSN 1758-2024 (2020) [Refereed Article]

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Copyright 2020 Future Medicine Ltd

DOI: doi:10.2217/nmt-2019-0031


This perspectives paper discusses patient-centered care for people living with motor neuron disease. We identify challenges and offer solutions from the patient-centered care literature for this population in frontline care, service delivery, research and health system organization. Examples from Australian and international motor neuron disease care are used to illustrate interrelated issues for practice and policy.

Item Details

Item Type:Refereed Article
Keywords:amyotrophic lateral sclerosis, co-design, guidelines, patient and public involvement, patient engagement, policy, shared decision-making
Research Division:Biomedical and Clinical Sciences
Research Group:Neurosciences
Research Field:Neurology and neuromuscular diseases
Objective Division:Health
Objective Group:Evaluation of health and support services
Objective Field:Health inequalities
UTAS Author:Hogden, A (Dr Anne Hogden)
ID Code:140989
Year Published:2020
Web of Science® Times Cited:2
Deposited By:Australian Institute of Health Service Management
Deposited On:2020-09-17
Last Modified:2022-08-23

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