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Australian perspectives on the ethical and regulatory considerations for responsible data sharing in response to the COVID-19 pandemic

Citation

Nicol, D and Chalmers, D and Critchley, C and Eckstein, L and Nielsen, J and Otlowski, M, Australian perspectives on the ethical and regulatory considerations for responsible data sharing in response to the COVID-19 pandemic, Journal of Law and Medicine, 27, (4) pp. 829-838. ISSN 1320-159X (2020) [Refereed Article]


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Copyright 2020 Thomson Reuters (Professional) Australia Limited.

Official URL: https://www.westlaw.com.au/maf/wlau/app/document?d...

Abstract

As the rush to understand and find solutions to the coronavirus disease 2019 pandemic continues, it is timely to re-examine the legal, social and ethical drivers for sharing health-related data from individuals around the globe. International collaboration and data sharing will be essential to the research effort. This raises the question of whether the urgent imperative to find therapies and vaccines may justify some temporary rebalancing of existing ethical and regulatory standards. The Global Alliance for Genomic Health is playing a leading role in collecting information about national approaches to these challenging questions. In this section, we examine some of the initiatives being taken in Australia against this global backdrop.

Item Details

Item Type:Refereed Article
Keywords:COVID-19, GA4GH, genomic data sharing, intellectual property, medical devices regulation, privacy, research ethics
Research Division:Law and Legal Studies
Research Group:Public law
Research Field:Privacy and data rights
Objective Division:Law, Politics and Community Services
Objective Group:Justice and the law
Objective Field:Law reform
UTAS Author:Nicol, D (Professor Dianne Nicol)
UTAS Author:Chalmers, D (Professor Don Chalmers)
UTAS Author:Critchley, C (Associate Professor Christine Critchley)
UTAS Author:Eckstein, L (Dr Lisa Eckstein)
UTAS Author:Nielsen, J (Associate Professor Jane Nielsen)
UTAS Author:Otlowski, M (Professor Margaret Otlowski)
ID Code:140923
Year Published:2020
Funding Support:Australian Research Council (DP180100269)
Web of Science® Times Cited:1
Deposited By:Law
Deposited On:2020-09-15
Last Modified:2021-04-28
Downloads:3 View Download Statistics

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