eCite Digital Repository

Developmentally appropriate supported self-management for children and young people with chronic conditions: A consensus


Saxby, N and Ford, K and Beggs, S and Battersby, M and Lawn, S, Developmentally appropriate supported self-management for children and young people with chronic conditions: A consensus, Patient Education and Counseling pp. 1-11. ISSN 0738-3991 (2019) [Refereed Article]

Copyright Statement

© 2019 Elsevier B.V. All rights reserved.

DOI: doi:10.1016/j.pec.2019.09.029


Objective/s: To create a consensus list of self-management definitions, recommendations, and endpoints for children and young people (0–20 years) with chronic conditions.

Methods: This study used a Delphi technique. Based on the number of relevant peer-reviewed publications, clinical academics were invited to participate in three survey rounds. Round one contained open-ended and multiple-choice questions eliciting general opinions on self-management. For round two, results were provided to the interdisciplinary expert panel as statements for rating their agreement using a 7-point Likert scale, with consensus predefined as moderately or extremely satisfied by >70% of participants. Statements not meeting consensus were re-presented in round three, with group feedback incorporated. Finalised statements informed creation of the ‘Partners in Health: Self-Management Consensus List for Children and Young People’.

Results: Sixteen clinical academics participated: 12 completed round one; 14 completed round two; and 12 completed round three. Of 101 statements, 90 reached consensus, with statements separated into five developmentally appropriate groups. Statements covered broad self-management and self-management support domains including knowledge, involvement, monitoring/responding to symptoms, transition, impact, lifestyle, and support. Division of responsibility and autonomy were distinct themes.

Conclusion and practice implications: This research provides consensus-based guidance for clinicians providing paediatric self-management support.

Item Details

Item Type:Refereed Article
Keywords:self-management, self-management support, children, adolescence, adolescents, chronic condition, chronic disease, clinical education
Research Division:Health Sciences
Research Group:Public health
Research Field:Community child health
Objective Division:Health
Objective Group:Specific population health (excl. Indigenous health)
Objective Field:Neonatal and child health
UTAS Author:Ford, K (Dr Karen Ford)
UTAS Author:Beggs, S (Dr Sean Beggs)
ID Code:137530
Year Published:2019
Web of Science® Times Cited:4
Deposited By:Medicine
Deposited On:2020-02-19
Last Modified:2020-04-30

Repository Staff Only: item control page