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Amyotrophic lateral sclerosis: improving care with a multidisciplinary approach

Citation

Hogden, A and Foley, G and Henderson, RD and James, N and Aoun, SM, Amyotrophic lateral sclerosis: improving care with a multidisciplinary approach, Journal of Multidisciplinary Healthcare, 19 pp. 205-215. ISSN 1178-2390 (2017) [Refereed Article]


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Copyright 2017 Hogden et al. Licensed under Creative Commons Attribution-NonCommercial 3.0 Unported (CC BY-NC 3.0) https://creativecommons.org/licenses/by-nc/3.0/

DOI: doi:10.2147/JMDH.S134992

Abstract

Amyotrophic lateral sclerosis (ALS) is a progressive neurodegenerative disease, leading to death within an average of 2-3 years. A cure is yet to be found, and a single disease-modifying treatment has had a modest effect in slowing disease progression. Specialized multidisciplinary ALS care has been shown to extend survival and improve patients' quality of life, by providing coordinated interprofessional care that seeks to address the complex needs of this patient group. This review examines the nature of specialized multidisciplinary care in ALS and draws on a broad range of evidence that has shaped current practice. The authors explain how multidisciplinary ALS care is delivered. The existing models of care, the role of palliative care within multidisciplinary ALS care, and the costs of formal and informal care are examined. Critical issues of ALS care are then discussed in the context of the support rendered by multidisciplinary-based care. The authors situate the patient and family as key stakeholders and decision makers in the multidisciplinary care network. Finally, the current challenges to the delivery of coordinated interprofessional care in ALS are explored, and the future of coordinated interprofessional care for people with ALS and their family caregivers is considered.

Item Details

Item Type:Refereed Article
Keywords:care coordination, interdisciplinary, interprofessional, motor neuron disease, palliative care, quality of life
Research Division:Health Sciences
Research Group:Health services and systems
Research Field:Health services and systems not elsewhere classified
Objective Division:Health
Objective Group:Evaluation of health and support services
Objective Field:Evaluation of health and support services not elsewhere classified
UTAS Author:Hogden, A (Dr Anne Hogden)
ID Code:137213
Year Published:2017
Web of Science® Times Cited:39
Deposited By:Australian Institute of Health Service Management
Deposited On:2020-02-05
Last Modified:2020-04-09
Downloads:1 View Download Statistics

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