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Women's Perceptions of Journeying Toward an Unknown Future With Breast Cancer: The 'Lives at Risk Study'
Rapport, F and Khanom, A and Doel, MA and Hutchings, HA and Bierbaum, M and Hogden, A and Shih, P and Braithwaite, J and Clement, C, Women's Perceptions of Journeying Toward an Unknown Future With Breast Cancer: The 'Lives at Risk Study', Qualitative Health Research, 28, (1) pp. 30-46. ISSN 1049-7323 (2018) [Refereed Article]
Copyright 2017 The Authors
Breast cancer risk classifications are useful for prognosis, yet little is known of their effect on patients. This study clarified women's understandings of risk as they "journeyed" through the health care system. Breast cancer patients and women undergoing genetic investigation were recruited ( N = 25) from a large UK Health Board, 2014-2015, completing a "Book of Experience," and Bio-photographic elicitation interviews. Stakeholder and Participant Feedback Forums were undertaken with key stakeholders, including patients, oncologists, funders, and policy developers, to inform team understanding. Thematic and visual frameworks from multidisciplinary analysis workshops uncovered two themes: "Subjective Understandings of Risk" and "Journeying Toward an Unknown Future." Breast cancer patients and women undergoing investigation experienced risk intuitively. Statistical formulations were often perplexing, diverting attention away from concrete life-and-death facts. Following risk classification, care must be co-defined to reduce patients' foreboding about an unknown future, taking into consideration personal risk management strategies and aspirations for a cancer-free future.
|Item Type:||Refereed Article|
|Keywords:||perceptions, breast cancer,|
|Research Division:||Health Sciences|
|Research Group:||Health services and systems|
|Research Field:||Health services and systems not elsewhere classified|
|Objective Group:||Specific population health (excl. Indigenous health)|
|Objective Field:||Women's and maternal health|
|UTAS Author:||Hogden, A (Dr Anne Hogden)|
|Web of Science® Times Cited:||10|
|Deposited By:||Australian Institute of Health Service Management|
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