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Patient-centered decision making in amyotrophic lateral sclerosis: where are we?
Hogden, A and Crook, A, Patient-centered decision making in amyotrophic lateral sclerosis: where are we?, Neurodegenerative disease management, 7, (6) pp. 377-386. ISSN 1758-2024 (2017) [Refereed Article]
Copyright 2017 Anne Hogden. Licensed under Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International (CC BY-NC-ND 4.0) https://creativecommons.org/licenses/by-nc-nd/4.0/
Developments in amyotrophic lateral sclerosis research and care delivery have created new arenas, and new dilemmas, for patients' decision making. This review explores three aspects of amyotrophic lateral sclerosis patient-centered care and decision making: patient-centered service delivery through the expanding multidisciplinary team; decision making for genetic testing and the implications of undergoing testing; and development of user-designed decision support tools to help patients and families make decisions as their choices become more complex. Until a cure is found, well-timed and effective decision making will rely on patient and family preferences to guide them through an increasingly complicated disease landscape.
|Item Type:||Refereed Article|
|Keywords:||multidisciplinary care; genetic counselling, decision-making|
|Research Division:||Health Sciences|
|Research Group:||Health services and systems|
|Research Field:||Health services and systems not elsewhere classified|
|Objective Group:||Public health (excl. specific population health)|
|Objective Field:||Public health (excl. specific population health) not elsewhere classified|
|UTAS Author:||Hogden, A (Dr Anne Hogden)|
|Deposited By:||Australian Institute of Health Service Management|
|Downloads:||16 View Download Statistics|
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