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Patient-centered decision making in amyotrophic lateral sclerosis: where are we?


Hogden, A and Crook, A, Patient-centered decision making in amyotrophic lateral sclerosis: where are we?, Neurodegenerative disease management, 7, (6) pp. 377-386. ISSN 1758-2024 (2017) [Refereed Article]


Copyright Statement

Copyright 2017 Anne Hogden. Licensed under Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International (CC BY-NC-ND 4.0)

DOI: doi:10.2217/nmt-2017-0026


Developments in amyotrophic lateral sclerosis research and care delivery have created new arenas, and new dilemmas, for patients' decision making. This review explores three aspects of amyotrophic lateral sclerosis patient-centered care and decision making: patient-centered service delivery through the expanding multidisciplinary team; decision making for genetic testing and the implications of undergoing testing; and development of user-designed decision support tools to help patients and families make decisions as their choices become more complex. Until a cure is found, well-timed and effective decision making will rely on patient and family preferences to guide them through an increasingly complicated disease landscape.

Item Details

Item Type:Refereed Article
Keywords:multidisciplinary care; genetic counselling, decision-making
Research Division:Health Sciences
Research Group:Health services and systems
Research Field:Health services and systems not elsewhere classified
Objective Division:Health
Objective Group:Public health (excl. specific population health)
Objective Field:Public health (excl. specific population health) not elsewhere classified
UTAS Author:Hogden, A (Dr Anne Hogden)
ID Code:137207
Year Published:2017
Deposited By:Australian Institute of Health Service Management
Deposited On:2020-02-05
Last Modified:2020-07-28
Downloads:16 View Download Statistics

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