eCite Digital Repository

Patients' perspectives of multidisciplinary home-based e-Health service delivery for motor neurone disease

Citation

James, N and Power, E and Hogden, A and Vucic, S, Patients' perspectives of multidisciplinary home-based e-Health service delivery for motor neurone disease, Disability and rehabilitation, 14, (7) pp. 737-743. ISSN 1748-3107 (2018) [Refereed Article]

Copyright Statement

Copyright 2018 Informa UK Limited, trading as Taylor & Francis Group

DOI: doi:10.1080/17483107.2018.1499139

Abstract

Purpose: To explore the views of people with motor neurone disease (MND) on the barriers, facilitators and potential benefits of using home-based e-Health service delivery (telehealth) to access MND multidisciplinary clinic care.

Methods: Twelve patients from three MND multidisciplinary clinics and an MND support association group completed a survey of information technology (IT) use and participated in interviews, to gather participants' experiences and perceptions of home-based telehealth for MND clinic care. Survey data were analyzed descriptively, with interview data analyzed using a stepwise inductive approach.

Results: Surveys revealed that participants used IT to communicate with family and friends, but were less likely to use the phone, email or videoconferencing with health professionals. Two themes of participants' use of IT in MND care reflected their experiences of MND care; and personal preferences for modes of healthcare delivery. Participants were willing to use telehealth for MND care, with family members acting as patients' main support for telehealth participation. Nevertheless, participants preferred face-to-face contact with the MND clinic team in the initial and early stages of the disease.

Conclusions: People living with MND may wish to participate in individual care planning to facilitate their access to a variety of e-Health service modalities. Additionally, individual care planning may allow healthcare professionals to deliver e-Health-based care, such as telehealth, to increase the scope of care provided. Research to ascertain the views of health professionals and family members as co-participants in service delivery via telehealth is needed to fully assess the potential contribution of e-Health. Implications for Rehabilitation People living with MND face a range of barriers to attending specialized multidisciplinary care, including fatigue, caregiver availability and logistical challenges to travel. Patients have indicated willingness to use e-Health applications to improve their access to care. Use of telehealth could expand service delivery to people with MND living long distances from multidisciplinary clinics, and increase the patient-centred focus of care by tailoring care planning. By offering telehealth services routinely, MND multidisciplinary clinics could also improve the quality and timelines of services offered.

Item Details

Item Type:Refereed Article
Keywords:multidisciplinary care, e-health, service delivery, person-centred care, neurodegenerative conditions
Research Division:Health Sciences
Research Group:Health services and systems
Research Field:Primary health care
Objective Division:Health
Objective Group:Provision of health and support services
Objective Field:Palliative care
UTAS Author:Hogden, A (Dr Anne Hogden)
ID Code:137203
Year Published:2018
Web of Science® Times Cited:2
Deposited By:Australian Institute of Health Service Management
Deposited On:2020-02-05
Last Modified:2020-05-22
Downloads:1 View Download Statistics

Repository Staff Only: item control page