eCite Digital Repository

Members of the public in the USA, UK, Canada and Australia expressing genetic exceptionalism say they are more willing to donate genomic data


Middleton, A and Milne, R and Howard, H and Niemiec, E and Robarts, L and Critchley, C and Nicol, D and Prainsack, B and Atutornu, J and Vears, DF and Smith, J and Steed, C and Bevan, P and Scott, ER and Bobe, J and Goodhand, P and Kleiderman, E and Thorogood, A and Morley, KI, Members of the public in the USA, UK, Canada and Australia expressing genetic exceptionalism say they are more willing to donate genomic data, European Journal of Human Genetics, 28 pp. 424-434. ISSN 1476-5438 (2020) [Refereed Article]


Copyright Statement

Copyright 2019 the authors. Licensed under Creative Commons Attribution 4.0 International (CC BY 4.0)

DOI: doi:10.1038/s41431-019-0550-y


Public acceptance is critical for sharing of genomic data at scale. This paper examines how acceptance of data sharing pertains to the perceived similarities and differences between DNA and other forms of personal data. It explores the perceptions of representative publics from the USA, Canada, the UK and Australia (n = 8967) towards the donation of DNA and health data. Fifty-two percent of this public held ‘exceptionalist’ views about genetics (i.e., believed DNA is different or ‘special’ compared to other types of medical information). This group was more likely to be familiar with or have had personal experience with genomics and to perceive DNA information as having personal as well as clinical and scientific value. Those with personal experience with genetics and genetic exceptionalist views were nearly six times more likely to be willing to donate their anonymous DNA and medical information for research than other respondents. Perceived harms from re-identification did not appear to dissuade publics from being willing to participate in research. The interplay between exceptionalist views about genetics and the personal, scientific and clinical value attributed to data would be a valuable focus for future research.

Item Details

Item Type:Refereed Article
Keywords:genomic data sharing, genetic exceptionalism, public survey
Research Division:Human Society
Research Group:Sociology
Research Field:Sociology of health
Objective Division:Expanding Knowledge
Objective Group:Expanding knowledge
Objective Field:Expanding knowledge in human society
UTAS Author:Critchley, C (Associate Professor Christine Critchley)
UTAS Author:Nicol, D (Professor Dianne Nicol)
ID Code:136364
Year Published:2020 (online first 2019)
Web of Science® Times Cited:14
Deposited By:Law
Deposited On:2019-12-16
Last Modified:2021-03-16
Downloads:20 View Download Statistics

Repository Staff Only: item control page