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Applying participatory health research elements in rural end-of-life research: reflections on conducting in-depth Interviews with participants on sensitive topics

Citation

Thompson, S and Marsh, P and Mond, JM and Brown, C, Applying participatory health research elements in rural end-of-life research: reflections on conducting in-depth Interviews with participants on sensitive topics, Forum Qualitative Sozialforschung, 20, (3) Article 14. ISSN 1438-5627 (2019) [Refereed Article]


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Copyright Statement

Copyright 2019 Stephanie Thompson, Pauline Marsh, Jon Mond, Craig Brown. Licensed under Creative Commons Attribution 4.0 International (CC BY 4.0) https://creativecommons.org/licenses/by/4.0/

Official URL: http://www.qualitative-research.net/index.php/fqs/...

Abstract

The "Living Loving Dying" research project aimed to improve end of life and bereavement care for people caring and dying in rural areas. The data were provided by people who had experienced caring for someone until his/her death, while living in an area of low population and geographical isolation. Undertaking data collection on such a sensitive topic, from people still vulnerable from the impacts of death and grief, requires the use of particularly sensitive research methods. It is also important that participants feel their voices are heard and that they are contributing to positive change for others. In view of this we positioned people to participate as community-partners and utilized a descriptive qualitative design with participatory elements in the data collection method of in-depth, semi structured interviewing. The non-hierarchical relationship between researchers and community-partners were key influences for using participatory elements in this research with a vulnerable population. In this article we reflect on the pragmatic and ethical considerations that the application of this method has for rural end-of-life research.

Item Details

Item Type:Refereed Article
Keywords:palliative care, rural health, compassion, grief
Research Division:Medical and Health Sciences
Research Group:Public Health and Health Services
Research Field:Health and Community Services
Objective Division:Health
Objective Group:Health and Support Services
Objective Field:Palliative Care
UTAS Author:Marsh, P (Dr Pauline Marsh)
UTAS Author:Mond, JM (Dr Jon Mond)
ID Code:135080
Year Published:2019
Deposited By:Centre for Rural Health
Deposited On:2019-09-27
Last Modified:2019-10-10
Downloads:0

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