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What does it take to deliver brilliant home-based palliative care? Using positive organisational scholarship and video reflexive ethnography to explore the complexities of palliative care at home

journal contribution
posted on 2023-05-20, 05:25 authored by Aileen Collier, Hodgins, M, Crawford, G, Every, A, Womsley, K, Jeffs, C, Houthuysen, P, Kang, S, Thomas, E, Weller, V, Van, C, Farrow, C, Dadich, A

Background: Despite the increasing number of people requiring palliative care at home, there is limited evidence on how home-based palliative care is best practised.

Aim: The aim of this participatory qualitative study is to determine the characteristics that contribute to brilliant home-based palliative care.

Design: This study was inspired by the brilliance project – an initiative to explore how positive organisational scholarship in healthcare can be used to study brilliant health service management from the viewpoint of patients, families, and clinicians. The methodology of positive organisational scholarship in healthcare was combined with video-reflexive ethnography.

Setting/participants: Home-based specialist palliative care services across two Australian states participated in the study. Clinicians were able to take part in the study at different levels. Pending their preference, this could involve video-recording of palliative care, facilitating and/or participating in reflexive sessions to analyse and critique the recordings, identifying the characteristics that contribute to brilliant home-based palliative care, and/or sharing the findings with others.

Results: Brilliance in home-based palliative care is contingent on context and is conceptualised as a variety of actions, people, and processes. Care is more likely to be framed as brilliant when it is epitomised: anticipatory aptitude and action; a weave of commitment; flexible adaptability; and/or team capacity-building.

Conclusion: This study is important because it verifies the characteristics of brilliant home-based palliative care. Furthermore, these characteristics can be adapted for use within other services.

History

Publication title

Palliative Medicine

Volume

33

Pagination

91-101

ISSN

0269-2163

Department/School

School of Nursing

Publisher

Arnold

Place of publication

Hodder Headline Plc, 338 Euston Road, London, England, Nw1 3Bh

Rights statement

Copyright 2018 The Authors

Repository Status

  • Restricted

Socio-economic Objectives

Palliative care

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