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Families of children with Down syndrome: what we know and what we need to know
Citation
Cuskelly, M and Hauser-Cram, P and Van Riper, M, Families of children with Down syndrome: what we know and what we need to know, Down Syndrome Research and Practice pp. 105-113. ISSN 0968-7912 (2008) [Refereed Article]
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© 2018 Down Syndrome Education International, Down Syndrome Education USA and/or associated organizations.
Official URL: https://library.down-syndrome.org/en-us/research-p...
Abstract
This paper provides a brief overview of what is currently known about families of children with Down syndrome. In
addition, it highlights a number of issues that require further research if we are to have a thorough understanding
of the impact of a child with Down syndrome on families as a system and on the individuals who make up that
system. Some of these issues include the need for: 1) a more balanced perspective – one that acknowledges
both positive and negative aspects of the experience, 2) greater attention to the experiences of fathers, 3) more
cross-cultural research and studies focused on cultural perspectives, 4) increased attention to the change in
demands for families as the individual with Down syndrome ages, 5) more longitudinal studies, 6) greater variety in
methodological approaches, for example greater use of qualitative approaches and observational methods, and 7)
an increase in the use of statistical approaches that model change and test hypotheses about predictors of change
in both parents and children.
Item Details
Item Type: | Refereed Article |
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Keywords: | Down syndrome, families, balanced perspective, cross-cultural |
Research Division: | Psychology |
Research Group: | Social and personality psychology |
Research Field: | Social psychology |
Objective Division: | Law, Politics and Community Services |
Objective Group: | Community services |
Objective Field: | Families and family services |
UTAS Author: | Cuskelly, M (Professor Monica Cuskelly) |
ID Code: | 126534 |
Year Published: | 2008 |
Deposited By: | Education |
Deposited On: | 2018-06-15 |
Last Modified: | 2018-08-16 |
Downloads: | 0 |
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